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Communicating Risks and Food Procedures through a Visual Poster for Caregivers of Patients with Dysphagia in Inpatient Care: Usability and Impact.通过视觉海报向住院护理中吞咽困难患者的护理人员传达风险和食物处理方法:可用性与影响
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本文引用的文献

1
Eating and drinking interventions for people at risk of lacking decision-making capacity: who decides and how?针对缺乏决策能力风险人群的饮食干预措施:由谁来决定以及如何决定?
BMC Med Ethics. 2015 Jun 11;16:41. doi: 10.1186/s12910-015-0034-8.
2
Dysphagia and quality of life.吞咽困难与生活质量。
Br J Community Nurs. 2013 May;Suppl:S14, S16, S18-9. doi: 10.12968/bjcn.2013.18.sup5.s14.
3
Stroke patients' and carers' perception of barriers to accessing stroke information.脑卒中患者及其照护者对获取脑卒中信息障碍的感知。
Top Stroke Rehabil. 2010 Mar-Apr;17(2):69-78. doi: 10.1310/tsr1702-69.
4
Comfort feeding only: a proposal to bring clarity to decision-making regarding difficulty with eating for persons with advanced dementia.仅提供舒适食物:针对有严重认知障碍的人进食困难的决策,建议引入明确的方法。
J Am Geriatr Soc. 2010 Mar;58(3):580-4. doi: 10.1111/j.1532-5415.2010.02740.x.
5
Impact of patient communication problems on the risk of preventable adverse events in acute care settings.患者沟通问题对急性护理环境中可预防不良事件风险的影响。
CMAJ. 2008 Jun 3;178(12):1555-62. doi: 10.1503/cmaj.070690.
6
Patient, carer and staff experience of a hospital-based stroke service.患者、护理人员及医护人员对医院卒中服务的体验。
Int J Qual Health Care. 2007 Apr;19(2):105-12. doi: 10.1093/intqhc/mzl073. Epub 2007 Feb 2.
7
Family perspectives on communication with healthcare providers during end-of-life cancer care.癌症终末期护理期间家庭对与医疗服务提供者沟通的看法。
Oncol Nurs Forum. 2006 Jul 1;33(4):753-60. doi: 10.1188/06.ONF.753-760.
8
The provision of health information to stroke patients within an acute hospital setting: what actually happens and how do patients feel about it?
Top Stroke Rehabil. 2006 Winter;13(1):78-98. doi: 10.1310/FC6M-P7L0-W3XD-4WAE.
9
Trends in ethnic disparities in stroke incidence in Auckland, New Zealand, during 1981 to 2003.1981年至2003年期间新西兰奥克兰中风发病率的种族差异趋势。
Stroke. 2006 Jan;37(1):56-62. doi: 10.1161/01.STR.0000195131.23077.85. Epub 2005 Dec 8.
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Nutrition in advanced dementia. Tube-feeding or hand-feeding until death?
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复杂的喂养决策:住院医院环境中工作人员、患者及其家属的看法

Complex Feeding Decisions: Perceptions of Staff, Patients, and Their Families in the Inpatient Hospital Setting.

作者信息

Miles Anna, Watt Tanya, Wong Wei-Yuen, McHutchison Louise, Friary Philippa

机构信息

The University of Auckland, New Zealand.

Hutt Valley District Health Board, Lower Hutt, New Zealand.

出版信息

Gerontol Geriatr Med. 2016 Aug 22;2:2333721416665523. doi: 10.1177/2333721416665523. eCollection 2016 Jan-Dec.

DOI:10.1177/2333721416665523
PMID:28680937
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5486486/
Abstract

Where swallowing difficulties are chronic or progressive, or a patient is palliative, tube feeding is often not deemed appropriate. Instead, patients continue to eat and drink despite the risks of pneumonia and death. There is currently little evidence to guide clinical practice in this field often termed "risk feeding." This qualitative study investigated staff, patient, and family member perceptions of risk feeding practices in one New Zealand hospital. Twenty-nine staff members and six patients and/or their family were interviewed. Thematic analysis revealed four global themes: supporting practice, communication, complexity of feeding decisions, and patient and family-centered care. Staff described limited education and organizational policy around risk feeding decisions. Communication was considered a major factor in the success. Feeding decisions are complex in the hospital environment. The themes identified in this study provide a foundation for hospital guideline development and implementation.

摘要

当吞咽困难是慢性的或进行性的,或者患者是姑息治疗时,管饲通常被认为不合适。相反,尽管有肺炎和死亡风险,患者仍继续进食和饮水。目前几乎没有证据可指导这个通常被称为“风险喂养”领域的临床实践。这项定性研究调查了新西兰一家医院的工作人员、患者及其家属对风险喂养做法的看法。采访了29名工作人员以及6名患者和/或他们的家属。主题分析揭示了四个总体主题:支持实践、沟通、喂养决策的复杂性以及以患者和家庭为中心的护理。工作人员表示围绕风险喂养决策的教育和组织政策有限。沟通被认为是成功的一个主要因素。在医院环境中,喂养决策很复杂。本研究中确定的主题为医院指南的制定和实施奠定了基础。