Lashewicz Bonnie M, Shipton Leah, Lien Kevin
University of Calgary, Canada.
J Intellect Disabil. 2019 Mar;23(1):117-131. doi: 10.1177/1744629517719347. Epub 2017 Jul 14.
Parents raising children with autism have distinct experiences that influence their well-being, relationships, engagement with the public, and interaction with education and healthcare systems. However, experiences of fathers of children with autism have been largely overlooked by researchers. This meta-synthesis is our synthesis of qualitative accounts of fathers' experiences and we included peer reviewed and gray literature articles that: (1) reported primary qualitative research, (2) included fathers of children with autism as participants, and (3) reported qualitative findings on the first-hand experiences of fathers of children with autism. Studies were appraised for quality and many theoretical and methodological deficiencies identified. Six studies met quality appraisal criteria and three main themes of findings from these studies were generated: (1) adaptation and concern with the future, (2) the importance of cultural context, and (3) reverence for one's child and new opportunities. Fathers' experiences illuminate a need for father-oriented resources that recognize fathers' value in children's lives.
抚养自闭症孩子的父母有着独特的经历,这些经历会影响他们的幸福、人际关系、与公众的接触以及与教育和医疗系统的互动。然而,自闭症孩子父亲的经历在很大程度上被研究人员忽视了。这项元综合研究是我们对父亲经历的定性描述进行的综合,我们纳入了同行评审和灰色文献文章,这些文章:(1)报告了原发性定性研究,(2)将自闭症孩子的父亲作为参与者,(3)报告了关于自闭症孩子父亲第一手经历的定性研究结果。对研究进行了质量评估,并发现了许多理论和方法上的缺陷。六项研究符合质量评估标准,并从这些研究中得出了三个主要发现主题:(1)适应与对未来的担忧,(2)文化背景的重要性,(3)对孩子的崇敬与新机遇。父亲的经历表明需要有以父亲为导向的资源,这些资源要认可父亲在孩子生活中的价值。