Mugeere Anthony, Atekyereza Peter R, Kirumira Edward K, Hojer Staffan
Department of Sociology and Anthropology, Makerere University, Uganda.
Department of Social Work, University of Gothenburg, Sweden.
Afr J Disabil. 2015 May 26;4(1):69. doi: 10.4102/ajod.v4i1.69. eCollection 2015.
Often located far apart from each other, deaf and hearing impaired persons face a multiplicity of challenges that evolve around isolation, neglect and the deprivation of essential social services that affect their welfare and survival. Although it is evident that the number of persons born with or acquire hearing impairments in later stages of their lives is increasing in many developing countries, there is limited research on this population. The main objective of this article is to explore the identities and experiences of living as a person who is deaf in Uganda. Using data from semi-structured interviews with 42 deaf persons (aged 19-41) and three focus group discussions, the study findings show that beneath the more pragmatic identities documented in the United States and European discourses there is a matrix of ambiguous, often competing and manifold forms in Uganda that are not necessarily based on the deaf and deaf constructions. The results further show that the country's cultural, religious and ethnic diversity is more of a restraint than an enabler to the aspirations of the deaf community. The study concludes that researchers and policy makers need to be cognisant of the unique issues underlying deaf epistemologies whilst implementing policy and programme initiatives that directly affect them. The upper case 'D' in the term deaf is a convention that has been used since the early 1970s to connote a 'socially constructed visual culture' or a linguistic, social and cultural minority group who use sign language as primary means of communication and identify with the deaf community, whereas the lower case 'd' in deaf refers to 'the audio logical condition of hearing impairment'. However, in this article the lower case has been used consistently.
聋人和听力受损者往往彼此相距甚远,面临着诸多挑战,这些挑战围绕着孤立、被忽视以及被剥夺基本社会服务展开,而这些服务会影响他们的福祉和生存。尽管在许多发展中国家,先天或后天在生命后期出现听力障碍的人数明显在增加,但针对这一人群的研究却很有限。本文的主要目的是探究乌干达聋人的身份认同和生活经历。通过对42名聋人(年龄在19至41岁之间)进行半结构化访谈以及三场焦点小组讨论所获得的数据,研究结果表明,在美国和欧洲话语中所记录的较为务实的身份认同之下,在乌干达存在着一系列模糊、常常相互竞争且多样的形式,这些形式不一定基于聋人和聋人群体的构建。结果还表明,该国的文化、宗教和种族多样性对聋人群体的愿望而言,更多的是一种限制而非助力。该研究得出结论,研究人员和政策制定者在实施直接影响聋人的政策和项目举措时,需要认识到聋人认识论背后的独特问题。“聋人”(deaf)一词中的大写字母“D”自20世纪70年代初以来一直被用作一种惯例,用以表示一种“社会建构的视觉文化”或一个使用手语作为主要交流方式并认同聋人群体的语言、社会和文化少数群体,而“deaf”中的小写字母“d”指的是“听力受损的听觉状况”。然而,在本文中一直使用的是小写形式。