创伤性脑损伤幸存者家庭照顾者的初步经历。
Initial experiences of family caregivers of survivors of a traumatic brain injury.
作者信息
Broodryk Mandi, Pretorius Chrisma
机构信息
Department of Psychology, Stellenbosch University, South Africa.
出版信息
Afr J Disabil. 2015 Aug 11;4(1):165. doi: 10.4102/ajod.v4i1.165. eCollection 2015.
BACKGROUND
There seems to be a paucity of research on the initial subjective experiences of family caregivers of survivors of a traumatic brain injury (TBI).
OBJECTIVE
To explore the challenges that family caregivers face during the initial stages of recovery of a relative who has sustained a TBI.
METHODS
Thematic analysis was used to explore the findings from semi-structured interviews that were conducted with 12 female family caregivers of relatives who had sustained a TBI.
RESULTS
Family caregivers recalled their initial experiences of the shock at hearing the news about their relative's TBI, negative experiences in hospital and frustrating interactions with healthcare professionals as particularly challenging.
CONCLUSION
The findings of this study emphasise caregivers' need for support, information and psycho-education, especially from healthcare professionals, from the very beginning stages of recovery from a TBI. Practical and physical needs with regard to admission to and care in the hospital were also highlighted. This research will hopefully contribute to creating awareness amongst healthcare professionals on how they can contribute to improvement of the services provided by the healthcare system based on the experiences of the caregivers who participated in this study.
背景
关于创伤性脑损伤（TBI）幸存者的家庭照顾者最初的主观体验，似乎缺乏相关研究。
目的
探讨家庭照顾者在亲属TBI恢复初期所面临的挑战。
方法
采用主题分析法，对12名TBI亲属的女性家庭照顾者进行半结构化访谈的结果进行分析。
结果
家庭照顾者回忆起，听到亲属TBI消息时最初的震惊体验、在医院的负面经历以及与医护人员令人沮丧的互动，都极具挑战性。
结论
本研究结果强调，照顾者在TBI恢复的最初阶段就需要支持、信息和心理教育，尤其是来自医护人员的支持。还强调了在医院住院和护理方面的实际和身体需求。这项研究有望提高医护人员的认识，让他们了解如何根据参与本研究的照顾者的经历，为改善医疗系统提供的服务做出贡献。
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