Hälleberg Nyman Maria, Frank Catharina, Langius-Eklöf Ann, Blomberg Karin, Sundberg Kay, Wengström Yvonne
School of Health Sciences, Örebro University, Örebro, Sweden.
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
JMIR Mhealth Uhealth. 2017 Jul 26;5(7):e107. doi: 10.2196/mhealth.6829.
Patients with prostate cancer are often cared for as outpatients during radiotherapy, which can be an aggravating circumstance for patient participation. There is a need to evaluate whether an interactive smartphone app could enable participation in care, specifically during treatment for prostate cancer. The interactive app (Interaktor) used in this study is developed in codesign with patients and health care professionals; it includes daily reports of symptoms, a risk assessment model, evidence-based self-care advice, along with the provision of immediate access to clinicians.
The aim of this study was to explore how patients with prostate cancer perceived their participation with or without the support of the smartphone app during radiotherapy.
A total of 28 prostate cancer patients receiving adjuvant radiotherapy were interviewed about their perceived participation in their own care. All the patients interviewed in this study participated in an intervention study where the control group received standard care that comprised having access to a contact nurse to turn to with any concerns during their treatment. In addition to standard care, the patients in the intervention group received the app downloaded in a smartphone. The patients' age ranged between 57 and 77 years; 17 patients used the smartphone app. The interviews were analyzed with directed qualitative content analysis.
The four dimensions of patient participation, which include mutual participation, fight for participation, requirement for participation, and participation in getting basic needs satisfied, were confirmed as valid perspectives in the interviews with the patients with prostate cancer, irrespective of whether they used the smartphone app. However, the patients who had used the smartphone app described it as a facilitating factor, especially for mutual participation.
Using innovative ways to communicate with patients, such as an interactive app for symptom management with contact with health care in real time, can successfully help achieve increased patient participation in care.
前列腺癌患者在放疗期间通常作为门诊患者接受护理，这可能是影响患者参与度的一个因素。有必要评估一款交互式智能手机应用程序是否能够促进患者参与护理，特别是在前列腺癌治疗期间。本研究中使用的交互式应用程序（Interaktor）是与患者和医疗保健专业人员共同设计开发的；它包括症状每日报告、风险评估模型、循证自我护理建议，以及提供与临床医生的即时联系。
本研究的目的是探讨前列腺癌患者在放疗期间，在有或没有智能手机应用程序支持的情况下，如何看待自己的参与情况。
对28名接受辅助放疗的前列腺癌患者进行访谈，了解他们对自身护理参与情况的看法。本研究中接受访谈的所有患者都参与了一项干预研究，对照组接受标准护理，即有一名联系护士，患者在治疗期间如有任何问题可向其咨询。除标准护理外，干预组患者在智能手机上下载了该应用程序。患者年龄在57岁至77岁之间；17名患者使用了智能手机应用程序。采用定向定性内容分析法对访谈进行分析。
患者参与的四个维度，包括相互参与、争取参与、参与需求和参与满足基本需求，在对前列腺癌患者的访谈中被确认为有效的观点，无论他们是否使用智能手机应用程序。然而，使用智能手机应用程序的患者将其描述为一个促进因素，特别是对于相互参与。
采用创新方式与患者沟通，例如一款用于症状管理并能实时与医疗保健人员联系的交互式应用程序，可以成功帮助提高患者的护理参与度。
