Author Affiliations: Division of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet (Mrs Gustavell and Drs Langius-Eklöf, Wengström, and Sundberg); Gastrocentrum (Mrs Gustavell, Dr Segersvärd) and Radiumhemmet, Breast and Sarcoma Unit (Dr Wengström), Karolinska University Hospital; and Division of Surgery, Department of Clinical Science, Intervention and Technology, Karolinska Institutet (Dr Segersvärd), Stockholm, Sweden.
Cancer Nurs. 2019 May/Jun;42(3):E1-E10. doi: 10.1097/NCC.0000000000000584.
Patients who have undergone pancreaticoduodenectomy because of pancreatic cancer experience distressing symptoms and unmet supportive care needs after discharge. To meet these needs, we have developed a mobile health app (Interaktor) for daily assessment of symptoms and access to self-care advice that includes a risk assessment model for alerts with real-time interactions with professionals.
The study aim was to develop and test a version of the Interaktor app adapted for patients who have undergone pancreaticoduodenectomy.
The app was developed and tested for feasibility in 6 patients during 4 weeks. One nurse monitored and responded to alerts. Logged data from the app were collected, and all participants were interviewed about their experiences.
Adherence to reporting daily was 84%. Alerts were generated in 41% of the reports. The patients felt reassured and cared for and received support for symptom management. The app was easy to use, had relevant content, and had few technical problems, although suggestions for improvement were given.
The daily reporting of symptoms and having access to a nurse in real time in the case of an alarming symptom seem to enhance symptom management and render a feeling of security in patients. Some modifications of the app are needed before use in a larger sample.
Daily reporting of symptoms after pancreaticoduodenectomy enhances symptom management, self-care, and participation without being a burden to patients, indicating that mobile health can be used in clinical practice by patients with poor prognosis who experience severe symptoms.
接受胰十二指肠切除术治疗胰腺癌的患者在出院后会经历痛苦的症状和未满足的支持性护理需求。为了满足这些需求,我们开发了一款移动健康应用程序(Interaktor),用于日常评估症状并提供自我护理建议,其中包括一个带有实时与专业人员交互的警报风险评估模型。
本研究旨在开发和测试适用于接受胰十二指肠切除术的患者的 Interaktor 应用程序版本。
在 4 周的时间里,有 6 名患者对该应用程序进行了开发和测试,以评估其可行性。一名护士监测并响应警报。从应用程序中收集了记录的数据,并对所有参与者进行了关于他们体验的访谈。
报告每日症状的依从性为 84%。在 41%的报告中生成了警报。患者感到安心和关怀,并获得了症状管理的支持。该应用程序易于使用,内容相关,且技术问题较少,但也提出了一些改进建议。
每日报告症状和在出现警报症状时实时获得护士的帮助似乎可以增强症状管理,并让患者感到安全。在更大的样本中使用之前,需要对应用程序进行一些修改。
胰十二指肠切除术后的每日症状报告增强了症状管理、自我护理和参与度,而不会给患者带来负担,这表明移动健康可以被预后不良且症状严重的患者在临床实践中使用。