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尊严的特殊性:临终关怀中的关系性参与。

The particularity of dignity: relational engagement in care at the end of life.

作者信息

Pols Jeannette, Pasveer Bernike, Willems Dick

机构信息

Section of Medical Ethics, Department of General Practice, Academic Medical Centre (AMC), University of Amsterdam, Meibergdreef 15, 1101 AZ, Postbus 22660, 1100 DD, Amsterdam, The Netherlands.

Department of Anthropology, University of Amsterdam, Nieuwe Achtergracht 166, Amsterdam, The Netherlands.

出版信息

Med Health Care Philos. 2018 Mar;21(1):89-100. doi: 10.1007/s11019-017-9787-9.

Abstract

This paper articulates dignity as relational engagement in concrete care situations. Dignity is often understood as an abstract principle that represents inherent worth of all human beings. In actual care practices, this principle has to be substantiated in order to gain meaning and inform care activities. We describe three exemplary substantiations of the principle of dignity in care: as a state or characteristic of a situation; as a way to differentiate between socio-cultural positions; or as personal meaning. We continue our analysis by presenting cases on dignity in care related to us in focus groups with medical professionals. Our empirical ethical lens is in this paper is to analyse, not the meaning of dignity, but the way in which it emerges in practices where it is pursued, within relationships between people, technologies, places, regulations, and the values cherished by or embedded in them. We show that professional caregivers recognize in the dignity of the person they care for their own dignity; giving up on the one implies no less than giving up on the other. This 'mirrored experience' of dignity expresses itself in professional's engagement with the situation. The value of this engagement, we argue, lies not primarily in realizing the particular content of the values at stake. We point to the importance of engagement itself, even if the values engaged with cannot be realized to the full, and even if competing versions of dignity are at stake simultaneously. In this way the caregivers provide us with interesting examples of moral actorship in situations of conflicting values.

摘要

本文将尊严阐述为在具体护理情境中的关系性参与。尊严通常被理解为一种抽象原则,代表着所有人的固有价值。在实际护理实践中,这一原则必须得到具体体现才能获得意义并指导护理活动。我们描述了护理中尊严原则的三种典型体现方式:作为一种情境的状态或特征;作为区分社会文化立场的一种方式;或作为个人意义。我们通过在与医学专业人员的焦点小组中呈现与我们相关的护理尊严案例来继续我们的分析。本文中我们的实证伦理视角是分析尊严并非其意义,而是在人们、技术、场所、法规以及它们所珍视或蕴含的价值观之间的关系中,在追求尊严的实践中尊严得以显现的方式。我们表明,专业护理人员在他们所护理之人的尊严中认识到自己的尊严;放弃一方无异于放弃另一方。这种尊严的“镜像体验”在专业人员对情境的参与中得以体现。我们认为,这种参与的价值并不主要在于实现所涉价值观的具体内容。我们指出参与本身的重要性,即使所涉及的价值观无法完全实现,即使同时存在相互竞争的尊严版本。通过这种方式,护理人员为我们提供了在价值冲突情境中道德行为的有趣示例。

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本文引用的文献

1
Good relations with technology: Empirical ethics and aesthetics in care.
Nurs Philos. 2017 Jan;18(1). doi: 10.1111/nup.12154. Epub 2016 Oct 18.
2
Dependence and a Kantian conception of dignity as a value.
Theor Med Bioeth. 2016 Feb;37(1):61-9. doi: 10.1007/s11017-016-9351-2.
3
Towards an empirical ethics in care: relations with technologies in health care.
Med Health Care Philos. 2015 Feb;18(1):81-90. doi: 10.1007/s11019-014-9582-9.
4
Washing the patient: dignity and aesthetic values in nursing care.
Nurs Philos. 2013 Jul;14(3):186-200. doi: 10.1111/nup.12014.
5
Dignity and the factors that influence it according to nursing home residents: a qualitative interview study.
J Adv Nurs. 2014 Jan;70(1):97-106. doi: 10.1111/jan.12171. Epub 2013 May 26.
6
Through the looking glass: good looks and dignity in care.
Med Health Care Philos. 2013 Nov;16(4):953-66. doi: 10.1007/s11019-013-9483-3.
7
'Viewing in slow motion': patients', families', nurses' and doctors' perspectives on end-of-life care in critical care.
J Clin Nurs. 2013 May;22(9-10):1442-54. doi: 10.1111/jocn.12095. Epub 2013 Mar 19.
8
The development of a model of dignity in illness based on qualitative interviews with seriously ill patients.
Int J Nurs Stud. 2013 Aug;50(8):1080-9. doi: 10.1016/j.ijnurstu.2012.12.014. Epub 2013 Jan 8.
9
[Not Available].
Tijdschr Gerontol Geriatr. 2005 Aug;36(4):205. doi: 10.1007/BF03074735.
10
Analyzing dignity: a perspective from the ethics of care.
Med Health Care Philos. 2013 Nov;16(4):945-52. doi: 10.1007/s11019-012-9427-3.

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