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网络上的睾丸癌信息——与欧洲泌尿外科学会指南一致的患者信息合适来源?

Testicular Cancer on the Web-an Appropriate Source of Patient Information in Concordance with the European Association of Urology Guidelines?

作者信息

Paffenholz Pia, Salem Johannes, Borgmann Hendrik, Nestler Tim, Pfister David, Ruf Christian, Tsaur Igor, Haferkamp Axel, Heidenreich Axel

机构信息

Department of Urology, Uro-Oncology, Robot Assisted and Reconstructive Urologic Surgery, University Hospital Cologne, Kerpener Straße 62, 50937, Cologne, Germany.

Department of Urology, University of Medicine, Langenbeckstr. 1, 55131, Mainz, Germany.

出版信息

J Cancer Educ. 2018 Dec;33(6):1314-1322. doi: 10.1007/s13187-017-1249-9.

Abstract

Despite the continuous growth of the internet, little is known about the quality of online information on testicular cancer, the most common solid malignancy in young men. In our study, we analysed the quality, readability and popularity of the most popular websites on testicular cancer. Therefore, we performed a web search for the term "testicular cancer" using www.google.com . Fifty-one websites were evaluated for HONcode quality certification, Alexa Popularity Rank and readability levels. Furthermore, the websites' content on eight major topics of the current European Association of Urology Guidelines on testicular cancer was assessed. Fourteen (28%) had a HONcode quality certificate and the mean Alexa Popularity Rank of all 51 websites was 54,040 (interquartile range 6648-282,797). Websites were difficult to read requiring 9 years of US school education to properly understand the information. The websites mentioned 80% of the guideline topics on average, revealing "prognosis" (59%) and "follow-up" (57%) as underrepresented subtopics. Furthermore, 12% of all topics were displayed incorrectly, particularly due to wrong information concerning "aetiology" (42%). Sixty percent of the topics were mentioned in an incomplete fashion, with less than half of the websites displaying complete information on "staging" (47%), "diagnostic evaluation" (49%) or "disease management" (45%). In general, online health information concerning testicular cancer is mentioned correctly on most websites. However, improvement regarding readability and completeness of the given information is needed. Nevertheless, highly selected websites on testicular cancer can serve as an appropriate source of patient information.

摘要

尽管互联网持续发展,但对于睾丸癌这一年轻男性中最常见的实体恶性肿瘤的在线信息质量却知之甚少。在我们的研究中,我们分析了最受欢迎的睾丸癌相关网站的质量、可读性和受欢迎程度。因此,我们使用www.google.com对“睾丸癌”一词进行了网络搜索。对51个网站进行了健康在线(HONcode)质量认证、Alexa排名和可读性水平评估。此外,还评估了这些网站在当前欧洲泌尿外科学会睾丸癌指南的八个主要主题方面的内容。14个(28%)网站拥有健康在线质量证书,所有51个网站的平均Alexa排名为54,040(四分位距为6648 - 282,797)。网站内容难以理解,需要美国9年学校教育水平才能正确理解其中信息。这些网站平均提及了80%的指南主题,显示“预后”(59%)和“随访”(57%)等子主题提及较少。此外,所有主题中有12%显示错误,特别是关于“病因”的错误信息(42%)。60%的主题提及不完整,不到一半的网站完整展示了关于“分期”(47%)、“诊断评估”(49%)或“疾病管理”(45%)的信息。总体而言,大多数网站上关于睾丸癌的在线健康信息提及正确。然而,所提供信息的可读性和完整性仍需改进。尽管如此,精心挑选的睾丸癌相关网站可作为患者信息的合适来源。

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