Yeo Sarah, Eigl Bernhard, Ingledew Paris-Ann
University of British Columbia, Vancouver, BC, Canada.
BC Cancer Vancouver Cancer Centre, Vancouver, BC, Canada.
Can Urol Assoc J. 2020 Aug;14(8):E363-E368. doi: 10.5489/cuaj.6154.
Testicular cancer is the most common solid malignancy diagnosed in young men aged 15-29. This population is also the age group that searches most actively for health information online. This study systematically evaluates the quality of websites available to patients with testicular cancer.
The term "testicular cancer" was inputted into the search engines Google, Dogpile, and Yippy. The top 100 websites intended for patient education were compiled. A validated structural rating tool was used to evaluate the websites with respect to attribution, currency, disclosure, interactivity, readability, and content.
Less than half of the websites (44) disclosed authorship. Sixty-one websites provided a last modified date, and of those, 46 were updated in the last two years. The average readability level was 11.01 using the Flesh-Kincaid grade level system. The most accurate topic was treatment, with 82 websites being completely accurate and containing all required information. The least accurate topic was prognosis, with 27 being completely accurate.
These results show that authorship and currency are lacking in many online testicular resources, making it difficult for patients to validate the reliability of information. The high average readability of testicular cancer websites can affect comprehension. Topics such as prognosis were incompletely covered although represent an area for which patients often seek more information. These results can be used to counsel patients on the strength and weaknesses of online testicular cancer resources.
睾丸癌是15至29岁年轻男性中最常见的实体恶性肿瘤。这一年龄段的人群也是最积极在网上搜索健康信息的群体。本研究系统评估了睾丸癌患者可获取的网站质量。
在谷歌、Dogpile和Yippy搜索引擎中输入“睾丸癌”一词。整理出前100个面向患者教育的网站。使用经过验证的结构评级工具,从归因、时效性、披露、交互性、可读性和内容等方面对这些网站进行评估。
不到一半的网站(44个)披露了作者信息。61个网站提供了最后修改日期,其中46个在过去两年内有更新。使用弗莱什-金凯德年级水平系统,平均可读性水平为11.01。最准确的主题是治疗,有82个网站完全准确且包含所有所需信息。最不准确的主题是预后,只有27个网站完全准确。
这些结果表明,许多在线睾丸癌资源缺乏作者信息和时效性,患者难以验证信息的可靠性。睾丸癌网站较高的平均可读性可能会影响理解。预后等主题虽然是患者经常寻求更多信息的领域,但却未得到充分涵盖。这些结果可用于指导患者了解在线睾丸癌资源的优缺点。