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美国泌尿科肿瘤学在线患者教育材料的可读性:简单沟通的需求。

Readability of American online patient education materials in urologic oncology: a need for simple communication.

机构信息

Department of Urology, University of North Carolina at Chapel Hill, Chapel Hill, NC.

Department of Urology, University of North Carolina at Chapel Hill, Chapel Hill, NC; Lineberger Comprehensive Cancer Center, Cancer Outcomes Research Group, Multidisciplinary Genitourinary Oncology, Chapel Hill, NC; Department of Epidemiology, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC.

出版信息

Urology. 2015 Feb;85(2):351-6. doi: 10.1016/j.urology.2014.10.035. Epub 2014 Nov 1.

Abstract

OBJECTIVE

To determine the readability levels of reputable cancer and urologic Web sites addressing bladder, prostate, kidney, and testicular cancers.

METHODS

Online patient education materials (PEMs) for bladder, prostate, kidney, and testicular malignancies were evaluated from the American Cancer Society, American Society of Clinical Oncology, National Cancer Institute, Urology Care Foundation, Bladder Cancer Advocacy Network, Prostate Cancer Foundation, Kidney Cancer Association, and Testicular Cancer Resource Center. Grade level was determined using several readability indices, and analyses were performed on the basis of cancer type, Web site, and content area (general, causes, risk factors and prevention, diagnosis and staging, treatment, and post-treatment).

RESULTS

Estimated grade level of online PEMs ranged from 9.2 to 14.2 with an overall mean of 11.7. Web sites for kidney cancer had the least difficult readability (11.3) and prostate cancer had the most difficult readability (12.1). Among specific Web sites, the most difficult readability levels were noted for the Urology Care Foundation Web site for bladder and prostate cancer and the Kidney Cancer Association and Testicular Cancer Resource Center for kidney and testes cancer. Readability levels within content areas varied on the basis of the disease and Web site.

CONCLUSION

Online PEMs in urologic oncology are written at a level above the average American reader. Simplification of these resources is necessary to improve patient understanding of urologic malignancy.

摘要

目的

确定针对膀胱癌、前列腺癌、肾癌和睾丸癌的知名癌症和泌尿科网站的可读性水平。

方法

从美国癌症协会、美国临床肿瘤学会、美国国立癌症研究所、泌尿科基金会、膀胱癌倡导网络、前列腺癌基金会、肾癌协会和睾丸癌资源中心评估了针对膀胱癌、前列腺癌、肾癌和睾丸癌的在线患者教育材料(PEM)。使用几种可读性指标确定了阅读水平,并且根据癌症类型、网站和内容领域(一般、病因、风险因素和预防、诊断和分期、治疗以及治疗后)进行了分析。

结果

在线 PEM 的估计阅读水平范围从 9.2 到 14.2,总体平均值为 11.7。肾癌网站的可读性最低(11.3),而前列腺癌网站的可读性最高(12.1)。在特定网站中,泌尿科基金会网站的膀胱癌和前列腺癌以及肾癌协会和睾丸癌资源中心的肾癌和睾丸癌的阅读水平最高。根据疾病和网站的不同,内容领域内的可读性水平也有所不同。

结论

泌尿科肿瘤学的在线 PEM 编写水平高于普通美国读者。有必要简化这些资源,以提高患者对泌尿系统恶性肿瘤的理解。

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