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关于膀胱癌的网站:患者信息的合适来源?

Websites on Bladder Cancer: an Appropriate Source of Patient Information?

作者信息

Salem Johannes, Paffenholz Pia, Bolenz Christian, von Brandenstein Melanie, Cebulla Angelika, Haferkamp Axel, Kuru Timur, Lee Cheryl T, Pfister David, Tsaur Igor, Borgmann Hendrik, Heidenreich Axel

机构信息

Department of Urology, University Hospital Cologne, Kerpener Straße 62, 50937, Cologne, Germany.

Department of Urology, University Hospital Ulm, Ulm, Germany.

出版信息

J Cancer Educ. 2019 Apr;34(2):381-387. doi: 10.1007/s13187-017-1316-2.

Abstract

A growing number of patients search for health information online. An early investigation of websites about bladder cancer (BCa) revealed mostly incomplete and particularly inaccurate information. We analyzed the quality, readability, and popularity of the most frequented websites on BCa. An Internet search on www.google.com was performed for the term "bladder cancer." After selecting the most frequented websites for patient information, HONcode quality certification, Alexa popularity rank, and readability scores (according to US grade levels) were investigated. A 36-point checklist was used to assess the content according to the EAU guidelines on BCa, which was categorized into seven topics. The popularity of the 49 websites analyzed was average, with a median Alexa popularity rank of 41,698 (interquartile range [IQR] 7-4,671,246). The readability was rated difficult with 11 years of school education needed to understand the information. Thirteen (27%) websites were HONcode certified. Out of 343 topics (seven EAU guideline topics each on 49 websites), 79% were mentioned on the websites. Of these, 10% contained incorrect information, mostly outdated or biased, and 34% contained incomplete information. Publically provided websites mentioned more topics per website (median [IQR] 7 [5.5-7] vs. 5.5 [3.3-7]; p = 0.022) and showed less incorrect information (median [IQR] 0 [0-1] vs. 1 [0-1]; p = 0.039) than physician-provided websites. Our study revealed mostly correct but partially incomplete information on BCa websites for patients. Physicians and public organizations should strive to keep their website information up-to-date and unbiased to optimize patients' health literacy.

摘要

越来越多的患者在网上搜索健康信息。一项早期对膀胱癌(BCa)相关网站的调查发现,这些网站大多信息不完整,尤其是不准确。我们分析了最常被访问的BCa网站的质量、可读性和受欢迎程度。在www.google.com上搜索了“膀胱癌”一词。在选择了最常被访问的患者信息网站后,对HONcode质量认证、Alexa受欢迎程度排名和可读性得分(根据美国年级水平)进行了调查。使用一份36分的清单,根据欧洲泌尿外科学会(EAU)关于BCa的指南对内容进行评估,该指南分为七个主题。所分析的49个网站的受欢迎程度一般,Alexa受欢迎程度排名中位数为41,698(四分位间距[IQR]为7 - 4,671,246)。其可读性被评定为困难,需要11年的学校教育才能理解这些信息。13个(27%)网站获得了HONcode认证。在343个主题(49个网站上每个网站有七个EAU指南主题)中,79%在网站上被提及。其中,10%包含错误信息,大多是过时或有偏差的,34%包含不完整信息。与医生提供的网站相比,公开提供的网站每个网站提及的主题更多(中位数[IQR]为7 [5.5 - 7]对5.5 [3.3 - 7];p = 0.022),且错误信息更少(中位数[IQR]为0 [0 - 1]对1 [0 - 1];p = 0.039)。我们的研究发现,针对患者的BCa网站上的信息大多正确,但部分不完整。医生和公共组织应努力使他们网站上的信息保持最新且无偏差,以优化患者的健康素养。

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