School of Nursing, University of Minnesota, Minneapolis, MN, USA.
School of Nursing, University of Wisconsin-Madison, Madison, WI, USA.
J Adv Nurs. 2018 Feb;74(2):350-363. doi: 10.1111/jan.13415. Epub 2017 Oct 4.
The aim of this study was to describe co-parenting communication in couples in the context of caregiving for children prenatally diagnosed and born with complex health conditions.
Foetal diagnosis of complex health conditions such as heart, central nervous system, or abdominal anomalies are confirmed more often than ever before. Following diagnosis, parents face challenges beginning before birth. The quality of co-parenting, when two individuals relate to each other as parents and share parental responsibilities, can have an impact on child health and development. Yet, little is known about co-parenting during the transition to parenthood after foetal diagnosis.
This secondary analysis of interview data was informed by Bowlby's theoretical work on a parent's view of self as caregiver and the literature on co-parenting.
Data were drawn from a larger, mixed methods, longitudinal study and included audio-recorded interviews conducted with 16 parents participating as eight couples after foetal diagnosis during the third trimester of pregnancy in 2011-2012 and again when children were 14-37 months old in 2014. Analysis of interviews transcribed verbatim focused on co-parenting communication.
Co-parenting communication regarding support, agreement and information sharing and a new category of shared meaning were related to the diagnosis before birth. Later, couples evolved in their co-parenting communication while caring for their toddlers and working towards achieving a sense of normalcy.
Variation in co-parenting communication among couples preparing and caring for children with complex health conditions, including the development of a shared meaning of the child's diagnosis, needs further investigation to inform nursing assessment and guide tailored interventions.
本研究旨在描述产前诊断出患有复杂健康状况的儿童并出生后照顾这些儿童的夫妇中的共同养育沟通情况。
胎儿被诊断出患有复杂健康状况（如心脏、中枢神经系统或腹部异常）的情况比以往任何时候都更加常见。确诊后，父母在孩子出生前就面临着挑战。作为父母相互关联并分担育儿责任的共同养育质量，可能会对孩子的健康和发展产生影响。然而，在胎儿确诊后向父母身份转变的过程中，共同养育的情况却鲜为人知。
本研究对访谈数据进行了二次分析，这些数据来源于鲍尔比（Bowlby）关于父母作为照顾者的自我观的理论工作以及关于共同养育的文献。
本研究的数据来自一项更大规模的、混合方法的、纵向研究，包括 2011-2012 年第三孕期对 16 名父母进行的录音访谈，这些父母在胎儿确诊后参与了研究，2014 年当孩子 14-37 个月大时再次进行了访谈。对逐字记录的访谈进行分析，重点关注共同养育沟通情况。
关于支持、共识和信息共享的共同养育沟通，以及一个新的共同意义类别，都与产前诊断有关。之后，在照顾幼儿并努力实现正常化的过程中，夫妇的共同养育沟通方式发生了变化。
为患有复杂健康状况的儿童做准备和照顾他们的夫妇之间的共同养育沟通存在差异，包括对孩子诊断的共同意义的发展，这需要进一步研究，以便为护理评估提供信息并指导定制干预措施。
