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患有先天性心脏病婴儿的父母所确定的护理与支持问题,用于互动式问题解决。

Caregiving and Support Issues Identified by Parents of an Infant With Congenital Heart Disease for Interactive Problem-Solving.

作者信息

Pridham Karen, Nemykina Yuliya, Connor Anthony, Melby Janet, Brown Roger

机构信息

School of Nursing, University of Wisconsin-Madison, Madison WI, USA

School of Nursing, University of Wisconsin-Madison, Madison WI, USA.

出版信息

Res Theory Nurs Pract. 2023 May 2. doi: 10.1891/RTNP-2022-0062.

DOI:10.1891/RTNP-2022-0062
PMID:37130796
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10620106/
Abstract

Parents of an infant with complex congenital heart disease report caregiving challenges in the infant's first half year. We studied the issues parent dyads (mothers and fathers) were dealing with and their effect on their coparenting competencies in interactive problem-solving. The issues 31 parent dyads identified for interactive problem-solving at either or both infants aged 2 and 6 months were typed as caregiving or relational/support. The parent dyad's interactive competencies were assessed from video recording for two types of tasks (i.e., caregiving and the parent dyad's relationship as caregivers). Constructs of Iowa Family Interaction Rating Scales were applied to assess the competencies of mothers, fathers, and the parent dyad for a group that received guided participation ( = 17) and a group that received usual care ( = 8). Pie charts showed feeding, most frequently identified for interactive problem-solving at 2 months, was surpassed at 6 months by growth and development. The time parents spent together was the most mentioned relationship issue at 2 and 6 months. Forest plots showed caregiving issues were associated with at least medium effect sizes for dyadic problem-solving for both parents at 2 and 6 months and for problem-solving for fathers at 2 and 6 months. Relational/support issues were associated with higher hostility and communication hindering than caregiving issues. Intervention to aid parents in interactive problem-solving for both caregiving and relationship/support issues merits development and testing.

摘要

患有复杂先天性心脏病婴儿的父母报告了婴儿出生后半年内的护理挑战。我们研究了父母二元组(母亲和父亲)所面临的问题以及这些问题对他们在互动解决问题中共同育儿能力的影响。在婴儿2个月和6个月时,31个父母二元组为互动解决问题所确定的问题被归类为护理问题或关系/支持问题。通过视频记录对两种类型的任务(即护理以及作为护理者的父母二元组关系)评估父母二元组的互动能力。爱荷华家庭互动评定量表的结构被应用于评估接受引导参与的一组(n = 17)和接受常规护理的一组(n = 8)中母亲、父亲以及父母二元组的能力。饼状图显示,在2个月时互动解决问题中最常被提及的喂养问题,在6个月时被生长发育问题超越。父母在一起的时间是2个月和6个月时最常被提及的关系问题。森林图显示,护理问题在2个月和6个月时对父母双方的二元组问题解决以及2个月和6个月时对父亲的问题解决至少有中等效应大小。与护理问题相比,关系/支持问题与更高的敌意和沟通阻碍相关。针对护理问题以及关系/支持问题帮助父母进行互动解决问题的干预措施值得开发和测试。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6db6/10620106/14b0bc4e9ee0/nihms-1897854-f0007.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6db6/10620106/9a4fae6c8ab5/nihms-1897854-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6db6/10620106/9b549cb071fc/nihms-1897854-f0005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6db6/10620106/2267c987c8fa/nihms-1897854-f0006.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6db6/10620106/14b0bc4e9ee0/nihms-1897854-f0007.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6db6/10620106/9a4fae6c8ab5/nihms-1897854-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6db6/10620106/9b549cb071fc/nihms-1897854-f0005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6db6/10620106/2267c987c8fa/nihms-1897854-f0006.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6db6/10620106/14b0bc4e9ee0/nihms-1897854-f0007.jpg

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本文引用的文献

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Res Theory Nurs Pract. 2022 Nov 4;36(4):361-394. doi: 10.1891/RTNP-2021-0096.
2
Caregiving Strategies in Families of Children with Congenital Heart Disease: A Qualitative Study.先天性心脏病患儿家庭的照护策略:一项定性研究
Iran J Nurs Midwifery Res. 2021 Jan 18;26(1):60-67. doi: 10.4103/ijnmr.IJNMR_19_20. eCollection 2021 Jan-Feb.
3
Collaborative caregiving of parents who have an infant with congenital heart disease.
父母共同照顾患有先天性心脏病的婴儿。
J Spec Pediatr Nurs. 2020 Apr;25(2):e12283. doi: 10.1111/jspn.12283. Epub 2019 Dec 2.
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Having to Be the One: Mothers Providing Home Care to Infants With Complex Cardiac Needs.不得不成为那个角色:为患有复杂心脏疾病的婴儿提供家庭护理的母亲们。
Am J Crit Care. 2019 Sep;28(5):354-360. doi: 10.4037/ajcc2019887.
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Home care experience and nursing needs of caregivers of children undergoing congenital heart disease operations: A qualitative descriptive study.先天性心脏病手术患儿照顾者的家庭护理体验和护理需求:一项定性描述性研究。
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Issues facing families of infants discharged after cardiac surgery: the perceptions of charity helpline staff.先天性心脏病术后出院患儿家庭面临的问题:慈善热线工作人员的看法。
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