Pridham Karen, Harrison Tondi M, McKechnie Anne Chevalier, Brown Roger
1 University of Wisconsin-Madison, Madison, WI, USA.
2 The Ohio State University, Columbus, OH, USA.
West J Nurs Res. 2018 Aug;40(8):1110-1130. doi: 10.1177/0193945917712693. Epub 2017 Jun 9.
This study described co-parenting motivations and quality of co-parenting features for parents of infants with complex congenital heart disease (CCHD), including differences over time by illness severity. Existing transcripts of parenting experience at infant age 1 and 12 months for 23 parent couples were analyzed using directed content analysis. Data were quantitized for additional description. Six co-parenting motivations and five co-parenting features were identified. Two co-parenting motivations had not been previously described: Developing the Co-Parenting Relationship and Maintaining the Couple Relationship. Variability in quality of co-parenting features was evident. However, the majority of parents showed high ratings. Motivations and quality of co-parenting features changed over time and were related to illness severity. Our findings increase the understanding of what parents are working on as a couple to parent an infant with CCHD and the quality of this co-parenting. Several questions for further study are presented.
本研究描述了患有复杂先天性心脏病（CCHD）婴儿的父母共同养育的动机以及共同养育特征的质量，包括疾病严重程度随时间的差异。使用定向内容分析法对23对父母在婴儿1个月和12个月时的养育经历现有记录进行了分析。对数据进行量化以作进一步描述。确定了六种共同养育动机和五种共同养育特征。有两种共同养育动机此前未被描述过：发展共同养育关系和维持夫妻关系。共同养育特征的质量存在明显差异。然而，大多数父母的评分较高。共同养育动机和特征质量随时间变化，且与疾病严重程度相关。我们的研究结果增进了对患有CCHD的婴儿父母作为夫妻共同养育孩子的努力以及这种共同养育质量的理解。还提出了几个有待进一步研究的问题。
