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母亲视角下的健康兄弟姐妹对有技术依赖儿童的家庭生活的适应。

Maternal Perspectives of Well Siblings' Adjustment to Family Life With a Technology-Dependent Child.

机构信息

1 Case Western Reserve University, Cleveland, OH, USA.

2 Akron Children's Hospital, Akron, OH, USA.

出版信息

J Fam Nurs. 2017 Aug;23(3):392-417. doi: 10.1177/1074840717721705.

Abstract

Technology-dependent (TD) children require complex care and are dependent on medical technology. Approximately 75% of families, in the United States, who are caring for a TD child, also care for a well child. Well siblings are likely to be affected by the experience of living with a TD sibling as the process of family normalization is described as a family affair. The experiences of well siblings are not well described. The purpose of this qualitative analysis was to describe the experiences of well siblings who are living in a family with a TD child. Mothers were interviewed about the experiences of their well children and were digitally audio recorded. The interviews were transcribed, and content analysis was conducted. Content analysis from the interviews revealed the major themes of well sibling adjustment within the family unit, upside (altruistic, prosocial behaviors) and downside (negative internal and external processing behaviors). These results can be applied to advance the delivery of family nursing care offered to these families.

摘要

依赖技术的(TD)儿童需要复杂的护理,并依赖医疗技术。在美国,大约 75%的照顾 TD 儿童的家庭也在照顾一个健康的孩子。健康的兄弟姐妹可能会受到与 TD 兄弟姐妹生活在一起的经历的影响,因为家庭正常化的过程被描述为家庭事务。健康的兄弟姐妹的经历并没有很好地描述。本定性分析的目的是描述生活在有 TD 儿童的家庭中的健康兄弟姐妹的经历。对母亲进行了关于其健康孩子的经历的访谈,并进行了数字音频记录。对访谈进行了转录,并进行了内容分析。访谈的内容分析揭示了家庭单位中健康兄弟姐妹的主要调整主题,包括积极面(利他、亲社会行为)和消极面(内部和外部的负面处理行为)。这些结果可用于改进向这些家庭提供的家庭护理服务。

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