创伤性脑损伤患儿的同胞经历：系统评价方案。
Well siblings' experiences of living with a child following a traumatic brain injury: a systematic review protocol.
机构信息
School of Nursing and Midwifery, Trinity College Dublin, Dublin, Ireland.
出版信息
Syst Rev. 2019 Apr 2;8(1):81. doi: 10.1186/s13643-019-1005-9.
BACKGROUND
The aim of this systematic review is to synthesize the available evidence identified through a systematic search on well siblings' experiences of living with a child following a traumatic brain injury (TBI). Brain injuries in children have been referred to as the "silent epidemic" of current times. Brain injuries in children are also recognized as a global public health concern, with the impact on children, effects on family life, and caregiving markedly misunderstood and underestimated. It is widely recognized that a serious brain injury impacts on the whole family, both immediate and extended regardless of the age of the individual who experiences the brain injury. While some research refers to parental experiences of children with TBIs and caregivers experiences, there is a dearth of literature relating to the impact on well siblings and their perspectives. Well siblings' experiences regarding the impact of living with a child post-TBI are not well understood. In order to advance the delivery of family nursing care in the home, an understanding of the well siblings' experiences is fundamental.
METHODS
The search will be conducted using seven medical and healthcare databases for articles published up until February 2019. Two reviewers will independently screen the articles for inclusion and assess for study quality using the standardized critical appraisal instrument from the Joanna Briggs Institute Qualitative Assessment and Review Instrument (JBI-QARI). Two reviewers will extract data from each study and carry out data analysis to uncover themes within the literature. Data synthesis of findings will be carried out using JBI-QARI.
DISCUSSION
It is anticipated that the findings of the proposed review will be of interest to health and social care professionals, particularly those working in units where children have suffered TBIs, their well siblings, and families. The aim is to identify well siblings' experiences which can inform enhanced care delivery to the families of children following a TBI. The findings of this review will provide evidence to aid professionals with the assessment of siblings' needs to enhance their sense of self within the family unit. Future directions, in addition to potential limitations of the approach, will be discussed.
SYSTEMATIC REVIEW REGISTRATION
PROSPERO 2018 CRD42018111036.
背景
本系统综述的目的是通过对创伤性脑损伤（TBI）患儿同胞的生活经历进行系统检索，综合现有证据。儿童脑损伤被称为当今的“无声流行病”。儿童脑损伤也被认为是一个全球性的公共卫生问题，儿童所受的影响、对家庭生活的影响以及对照顾者的影响明显被误解和低估。人们普遍认识到，严重的脑损伤会对整个家庭，包括直系亲属和延伸亲属，产生影响，无论经历脑损伤的个体年龄大小如何。虽然有些研究提到了父母对患有 TBI 的孩子和照顾者的经历，但关于对健康的兄弟姐妹及其观点的影响的文献却很少。健康的兄弟姐妹对孩子经历 TBI 后的生活的影响尚不清楚。为了在家中推进家庭护理服务，了解健康兄弟姐妹的经历是至关重要的。
方法
将使用七个医学和医疗保健数据库对截至 2019 年 2 月发表的文章进行搜索。两位评审员将独立筛选文章是否符合纳入标准，并使用 Joanna Briggs 研究所定性评估和审查工具（JBI-QARI）的标准化评估工具评估研究质量。两位评审员将从每项研究中提取数据，并对文献进行数据分析，以揭示主题。使用 JBI-QARI 对研究结果进行数据综合。
讨论
预计该研究的结果将引起卫生和社会保健专业人员的兴趣，特别是那些在儿童遭受 TBI 的单位工作的人员、他们的健康兄弟姐妹和家庭。目的是确定健康兄弟姐妹的经历，以便为 TBI 患儿的家庭提供更好的护理服务。该综述的结果将提供证据，帮助专业人员评估兄弟姐妹的需求，增强他们在家庭单位中的自我意识。除了讨论方法的潜在局限性外，还将讨论未来的方向。
系统评价注册
PROSPERO 2018 CRD42018111036。
Zotero 插件