Johnston Bridget, Flemming Kate, Narayanasamy Melanie Jay, Coole Carolyn, Hardy Beth
School of Medicine, Dentistry & Nursing, College of Medical, Veterinary & Life Sciences, University of Glasgow, 57-61 Oakfield Avenue, Glasgow, G12 8LL, UK.
Department of Health Sciences, University of York, Heslington YO10 5DD, York, UK.
BMC Health Serv Res. 2017 Aug 22;17(1):574. doi: 10.1186/s12913-017-2450-6.
Patient reported outcome measures are frequently used standard questionnaires or tools designed to collect information from patients regarding their health status and care. Their use enables accurate and relevant insight into changes in health, quality of life, and symptom severity to be acquired. The purpose of this scoping review was to identify PROMs that had been subject to rigorous development and were suitable for use in palliative and end of life care for clinical practice and/or research purposes. The review had a specific focus on measures which could be used to assess perceptions of dignity in these contexts.
A scoping review of English-language papers published between 2005 and 2015. Searches were devised in conjunction with an information science specialist and were undertaken in Medline; PsycINFO; EMBASE; CINAHL; Social Science Citation Index; ASSIA; CENTRAL; CDSR; DARE; HTA; Oxford PROM Bibliography; PROQOLID, using dignity related terms such as personhood; dignity or dignified; patient-centred care; which were linked (via the Boolean operator "AND") to care-related terms such as terminal care; hospice care; palliative care; end of life. Papers were assessed against inclusion criteria and appraised for quality.
The search strategy produced an initial 7845 articles. After three rounds of eligibility assessment, eight articles discussing eight patients reported outcome measures were found to meet the inclusion criteria and were included in the final review. These underwent a thorough critical appraisal process. All seven studies were empirical research focused on the development and testing of a PROM.
The eight patient reported outcome measures had all undergone some psychometric testing, and covered dignity aspects suggesting that they could be considered for use for research purposes to assess dignity. There were also indications that some could be implemented into a clinical setting. However, each measure had limitations and scope for further development.
患者报告结局测量是常用的标准问卷或工具，旨在收集患者有关其健康状况和护理情况的信息。使用这些工具能够准确且相关地洞察健康、生活质量和症状严重程度的变化。本范围综述的目的是识别经过严格开发且适用于姑息治疗和临终关怀以用于临床实践和/或研究目的的患者报告结局测量工具。该综述特别关注可用于评估这些情况下尊严感的测量工具。
对2005年至2015年间发表的英文论文进行范围综述。与信息科学专家共同设计检索策略，并在以下数据库中进行检索：医学期刊数据库；心理学文摘数据库；荷兰医学文摘数据库；护理学与健康领域数据库；社会科学引文索引；应用社会科学索引与摘要数据库；考克兰系统评价数据库；循证医学数据库；循证卫生保健数据库；卫生技术评估数据库；牛津患者报告结局测量文献目录；患者报告结局测量工具质量指标数据库，使用与尊严相关的术语，如人格；尊严或有尊严的；以患者为中心的护理；这些术语通过布尔运算符“AND”与与护理相关的术语相连，如临终护理；临终关怀；姑息治疗；生命末期。根据纳入标准对论文进行评估并对质量进行评价。
检索策略初步检索到7845篇文章。经过三轮资格评估，发现八篇讨论八项患者报告结局测量工具的文章符合纳入标准，并纳入最终综述。这些文章经过了全面的严格评价过程。所有七项研究均为实证研究，重点是患者报告结局测量工具的开发和测试。
八项患者报告结局测量工具均经过了一些心理测量测试，并涵盖了尊严方面，表明它们可考虑用于研究目的以评估尊严。也有迹象表明其中一些可应用于临床环境。然而，每项测量工具都有局限性和进一步开发的空间。
