Camilleri Isaura, Ward Martin, Scerri Josianne
J Psychosoc Nurs Ment Health Serv. 2017 Dec 1;55(12):16-21. doi: 10.3928/02793695-20170818-06. Epub 2017 Aug 28.
The shift in care from long-term hospitalization of individuals with mental illness to the community places a greater onus of responsibility on informal caregivers. The purpose of the current study was to explore the lived experiences of long-term caregivers of individuals with unipolar depression. A qualitative phenomenological methodology was used and two sets of semi-structured interviews were conducted with nine informal caregivers. Data were transcribed following Giorgi's phenomenological method. The following three themes were identified: Flooded by Emotions, Personal Growth and Satisfaction, and Psychosocial Effects and Challenges. Caregivers described adapting by adjusting their behavior to avoid conflict with care recipients. These adjustments had a detrimental effect on their well-being, where they described that they were "existing but not living." These findings highlight the need for ongoing support, which should be tailored to the unique needs and concerns of individuals who are providing long-term care to individuals with depression. [Journal of Psychosocial Nursing and Mental Health Services, 55(12), 16-21.].
精神疾病患者的护理模式从长期住院转向社区护理，这使得非正式护理人员承担了更大的责任。本研究的目的是探索单相抑郁症患者长期护理人员的生活经历。采用了质性现象学方法，并对九名非正式护理人员进行了两组半结构化访谈。数据按照 Giorgi 的现象学方法进行转录。确定了以下三个主题：情绪淹没、个人成长与满足以及心理社会影响与挑战。护理人员描述了通过调整自己的行为来避免与护理对象发生冲突以进行适应。这些调整对他们的幸福感产生了不利影响，他们表示自己“只是生存而不是生活”。这些发现凸显了持续提供支持的必要性，这种支持应根据为抑郁症患者提供长期护理的个人的独特需求和关切进行量身定制。[《心理社会护理与精神健康服务杂志》，55(12)，16 - 21。]
