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患有患病新生儿或早产儿的母亲的精神需求——德国母亲的横断面调查

Spiritual needs of mothers with sick new born or premature infants-A cross sectional survey among German mothers.

作者信息

Büssing Arndt, Waßermann Undine, Christian Hvidt Niels, Längler Alfred, Thiel Michael

机构信息

Professorship Quality of Life, Spirituality and Coping, Institute of Integrative Medicine, Witten/Herdecke University, Germany; FLZ-Forschungs- und Lehrzentrum Herdecke, Germany; Academy of Geriatric Cancer Research (AgeCare), Odense University Hospital, Odense, Denmark.

Professorship Quality of Life, Spirituality and Coping, Institute of Integrative Medicine, Witten/Herdecke University, Germany; Gemeinschaftskrankenhaus Herdecke, Herdecke, Germany.

出版信息

Women Birth. 2018 Apr;31(2):e89-e98. doi: 10.1016/j.wombi.2017.08.002. Epub 2017 Aug 24.

Abstract

BACKGROUND

Spirituality is part of the basic needs of all humans, yet often undervalued by health professionals. Less is known about the spiritual needs of mothers of preterm or sick new born children.

AIM

Identify unmet psychosocial and spiritual needs of these mothers, and to relate these needs to their perceived stress and impairments of life concerns.

METHODS

Anonymous cross-sectional survey with standardized instruments (e.g., Spiritual Needs Questionnaire) among 125 mothers of two paediatric departments in Germany.

FINDINGS

Mothers felt supported by their partner and hospital staff, and hospital staff assured 82% of them that they must not worry about their child's prognosis. They nevertheless did have specific unmet spiritual needs. Religious Needs and Existentialistic Needs scored lowest, while Giving/Generativity Needs were of moderate and Inner Peace Needs of strongest relevance. With respect to the expected diagnosis and prognosis of their child, there were no significant differences for their secular spiritual needs scores, but significant differences for Religious Needs which scored highest in mothers with children having an unclear prognosis (F=8.6; p=.004). Particularly Inner Peace Needs correlated with their stress perception (r=.34), impairments of life concerns (r=.25) and grief (r=.23).

DISCUSSION

Mothers of sick born/premature children felt supported by the hospital team and their partner, but nevertheless experienced stress and daily life impairments, and particularly have unmet Inner Peace Needs.

CONCLUSIONS

Addressing mothers' specific needs may help support them in their struggle with their difficult situation avoiding fears and insecurity and thus facilitating positive bonding to their child.

摘要

背景

精神性是所有人基本需求的一部分,但往往被医疗专业人员低估。对于早产或患病新生儿母亲的精神需求了解较少。

目的

确定这些母亲未得到满足的心理社会和精神需求,并将这些需求与她们感知到的压力及生活困扰联系起来。

方法

在德国两个儿科部门,对125名母亲采用标准化工具(如《精神需求问卷》)进行匿名横断面调查。

结果

母亲们感到得到了伴侣和医院工作人员的支持,82%的医院工作人员向她们保证不必担心孩子的预后。然而,她们确实有一些未得到满足的特定精神需求。宗教需求和存在主义需求得分最低,而给予/繁衍需求处于中等水平,内心平静需求最为相关。关于孩子的预期诊断和预后,她们的世俗精神需求得分没有显著差异,但宗教需求存在显著差异,在孩子预后不明的母亲中得分最高(F = 8.6;p = 0.004)。特别是内心平静需求与她们的压力感知(r = 0.34)、生活困扰(r = 0.25)和悲伤(r = 0.23)相关。

讨论

患病/早产新生儿的母亲感到得到了医院团队和伴侣的支持,但仍然经历压力和日常生活困扰,特别是内心平静需求未得到满足。

结论

满足母亲的特定需求可能有助于支持她们应对困境,避免恐惧和不安全感,从而促进与孩子建立积极的情感联系。

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