Pike Caitlin, Kritzinger Alta, Pillay Bhavani
a Department of Speech-Language Pathology and Audiology , University of Pretoria , Pretoria , South Africa.
Top Stroke Rehabil. 2017 Dec;24(8):627-639. doi: 10.1080/10749357.2017.1366012. Epub 2017 Aug 29.
A previous systematic review found limited data regarding social participation in working-age people with aphasia (PWA). A review of recent studies may reveal more information on challenges in reestablishing social roles.
The aim was to provide an updated systematic review on social participation in PWA under 65 years of age. Studies from 2005 to 2017 were searched from Scopus, Pubmed, and Psychinfo. Search terms were derived from the International Classification of Functioning, Disability and Health (ICF) and the Aphasia- Framework for Outcomes Measures (A-FROM). Aspects of domestic life, interpersonal relations and interactions, education and employment, and community, civic, and social life were investigated.
From 2864 initial hits, 11 studies were identified, all of which were on the American Speech-Language-Hearing Association (ASHA) Level III of evidence. The studies indicated that participation in domestic life is reduced and PWA showed reduced social networks, loss of friendships and changes in the quality of marital relations. Few PWA returned to work or spent time on education. Limitations in community, civic, and social life were noted and there were contradictory findings on the impact of contextual factors on social participation. There was an increase in research into contextual factors impacting on social participation in PWA and in the use of conceptual frameworks in the last decade.
While the ICF conceptual framework is increasingly used, no studies used the A-FROM. There is greater use of standardized assessments and larger sample sizes.
先前的一项系统评价发现,关于失语症成年患者(PWA)社会参与的数据有限。对近期研究进行综述可能会揭示更多关于重新建立社会角色所面临挑战的信息。
旨在对65岁以下失语症成年患者的社会参与情况进行更新的系统评价。从Scopus、Pubmed和Psychinfo数据库中检索2005年至2017年的研究。检索词来源于《国际功能、残疾和健康分类》(ICF)和《失语症结局测量框架》(A-FROM)。对家庭生活、人际关系与互动、教育与就业以及社区、公民和社会生活等方面进行了调查。
从2864条初始检索结果中,确定了11项研究,所有这些研究均为美国言语语言听力协会(ASHA)证据等级III级。研究表明,失语症成年患者的家庭生活参与度降低,社交网络减少,失去朋友,婚姻关系质量发生变化。很少有失语症成年患者重返工作岗位或接受教育。研究注意到他们在社区、公民和社会生活方面存在局限,并且关于背景因素对社会参与的影响存在相互矛盾的研究结果。在过去十年中,对影响失语症成年患者社会参与的背景因素以及概念框架使用情况的研究有所增加。
虽然越来越多地使用ICF概念框架,但没有研究使用A-FROM。标准化评估的使用更加广泛,样本量也更大。