Anderson Jocelyn C, Glass Nancy E, Campbell Jacquelyn C
Jocelyn C. Anderson, PhD, RN, is Postdoctoral Scholar, University of Pittsburgh School of Medicine, Pennsylvania. Nancy E. Glass, PhD, MPH, RN, is Professor; and Jacquelyn C. Campbell, PhD, RN, FAAN, is Anna D. Wolf Chair and Professor, Johns Hopkins University School of Nursing, Baltimore, Maryland.
Nurs Res. 2017 Sep/Oct;66(5):405-409. doi: 10.1097/NNR.0000000000000235.
Maintaining safety is of utmost importance during research involving participants who have experienced intimate partner violence (IPV). Limited guidance on safety protocols to protect participants is available, particularly information related to technology-based approaches to informed consent, data collection, and contacting participants during the course of a study.
The purpose of the article is to provide details on the safety protocol developed and utilized with women receiving care at an urban HIV clinic and who were taking part in an observational study of IPV, mental health symptoms, and substance abuse and their relationship to HIV treatment adherence. The protocol presents the technological strategies to promote safety and allow autonomy in participant decision-making throughout the research process, including Voice over Internet Protocol telephone numbers, and tablet-based eligibility screening and data collection. Protocols for management of participants at risk for suicide and/or intimate partner homicide that included automated high-risk messaging to participants and research staff and facilitated disclosure of risk to clinical staff based on participant preferences are discussed.
Use of technology and partnership with clinic staff helped to provide an environment where research regarding IPV could be conducted without undue burden or risk to participants. Utilizing tablet-based survey administration provided multiple practical and safety benefits for participants. Most women who screened into high-risk categories for suicide or intimate partner homicide did not choose to have their results shared with their healthcare providers, indicating the importance of allowing participants control over information sharing whenever possible.
在涉及遭受亲密伴侣暴力（IPV）的参与者的研究中，维护安全至关重要。关于保护参与者的安全协议的指导有限，特别是与基于技术的知情同意、数据收集以及在研究过程中联系参与者的方法相关的信息。
本文的目的是详细介绍为在城市艾滋病毒诊所接受护理且参与IPV、心理健康症状、药物滥用及其与艾滋病毒治疗依从性的关系的观察性研究的女性制定和使用的安全协议。该协议提出了在整个研究过程中促进安全并允许参与者自主决策的技术策略，包括互联网协议语音电话号码以及基于平板电脑的资格筛查和数据收集。讨论了针对有自杀和/或亲密伴侣杀人风险的参与者的管理协议，其中包括向参与者和研究人员自动发送高风险信息，并根据参与者的偏好促进向临床工作人员披露风险。
技术的使用以及与诊所工作人员的合作有助于营造一个环境，使关于IPV的研究能够在不给参与者带来不当负担或风险的情况下进行。使用基于平板电脑的调查管理为参与者带来了多种实际和安全益处。大多数筛查出有自杀或亲密伴侣杀人高风险类别的女性没有选择将她们的结果分享给她们的医疗保健提供者，这表明尽可能让参与者控制信息共享的重要性。
