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癌症患者如何使用交互式癌症沟通系统并从中受益。

How Cancer Patients Use and Benefit from an Interactive Cancer Communication System.

作者信息

Han Jeong Yeob, Hawkins Robert, Baker Timothy, Shah Dhavan V, Pingree Suzanne, Gustafson David H

机构信息

a Department of Advertising and Public Relations , Grady College of Journalism and Mass Communication, University of Georgia , Athens , Georgia , USA.

b Center for Health Enhancement Systems Studies , University of Wisconsin-Madison , Madison , Wisconsin , USA.

出版信息

J Health Commun. 2017 Oct;22(10):792-799. doi: 10.1080/10810730.2017.1360413. Epub 2017 Sep 18.

DOI:10.1080/10810730.2017.1360413
PMID:28922091
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6010201/
Abstract

Despite the mounting evidence of efficacy of eHealth interventions, their mechanisms of action remain unknown. The current study analyzed patient log data as each patient engaged in an eHealth system called the Comprehensive Health Enhancement Support System (CHESS) and reports on how patients engage with different combinations of eHealth services over time. Newly diagnosed breast cancer patients (N = 443) were given access for 6 months to one of four different configurations of CHESS: (1) Information, (2) Information and Support, (3) Information, Support, and Coaching (Full CHESS), and (4) Full CHESS and Mentor. Besides a baseline survey, three follow-up posttests were administered. Action log data on how patients engaged with the CHESS were also collected and merged with surveys to examine how patients benefit during the cancer experience. The findings suggest that usage patterns were not competitive, implying that cancer patients' access to more complex tools generates more use with their time spreading out over the diverse services. Despite overall decline in usage rates, it was less severe in Full CHESS and Mentor condition, suggesting that communication functions drive long-term engagement with the system. Notably, the strongest relation between use and cancer information competence appeared late in the follow-up period.

摘要

尽管有越来越多的证据表明电子健康干预措施具有疗效,但其作用机制仍然未知。本研究分析了患者在使用一个名为综合健康强化支持系统(CHESS)的电子健康系统时的日志数据,并报告了患者如何随着时间的推移与不同组合的电子健康服务进行互动。新诊断出的乳腺癌患者(N = 443)被给予6个月的时间使用CHESS的四种不同配置之一:(1)信息,(2)信息与支持,(3)信息、支持与指导(完整CHESS),以及(4)完整CHESS与导师。除了基线调查外,还进行了三次随访后测。还收集了患者使用CHESS的行动日志数据,并与调查数据合并,以研究患者在癌症经历期间如何受益。研究结果表明,使用模式并非相互竞争,这意味着癌症患者使用更复杂的工具会带来更多使用,且他们的时间会分散在各种服务上。尽管使用率总体呈下降趋势,但在完整CHESS与导师配置的情况下下降幅度较小,这表明沟通功能推动了患者与系统的长期互动。值得注意的是,使用与癌症信息能力之间最强的关系出现在随访后期。

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本文引用的文献

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The wired patient: patterns of electronic patient portal use among patients with cardiac disease or diabetes.联网患者:心脏病或糖尿病患者使用电子患者门户网站的模式
J Med Internet Res. 2015 Feb 20;17(2):e42. doi: 10.2196/jmir.3157.
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Psychosocial interventions for patients and caregivers in the age of new communication technologies: opportunities and challenges in cancer care.新通信技术时代针对患者及照护者的心理社会干预:癌症护理中的机遇与挑战
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The Added Value of Log File Analyses of the Use of a Personal Health Record for Patients With Type 2 Diabetes Mellitus: Preliminary Results.2型糖尿病患者使用个人健康记录的日志文件分析的附加值:初步结果。
J Diabetes Sci Technol. 2014 Mar;8(2):247-255. doi: 10.1177/1932296814525696. Epub 2014 Mar 4.
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How can research keep up with eHealth? Ten strategies for increasing the timeliness and usefulness of eHealth research.研究如何跟上电子健康的步伐?提高电子健康研究及时性和实用性的十大策略。
J Med Internet Res. 2014 Feb 19;16(2):e36. doi: 10.2196/jmir.2925.
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Understanding the usage of content in a mental health intervention for depression: an analysis of log data.了解抑郁症心理健康干预中内容的使用情况:日志数据分析
J Med Internet Res. 2014 Jan 31;16(1):e27. doi: 10.2196/jmir.2991.
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Usage of a generic web-based self-management intervention for breast cancer survivors: substudy analysis of the BREATH trial.一种基于网络的通用自我管理干预措施在乳腺癌幸存者中的应用:BREATH试验的子研究分析
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