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为患有脆性X综合征的学龄期及青少年男孩提供的口语语言干预远程服务。

Distance delivery of a spoken language intervention for school-aged and adolescent boys with fragile X syndrome.

作者信息

McDuffie Andrea, Banasik Amy, Bullard Lauren, Nelson Sarah, Feigles Robyn Tempero, Hagerman Randi, Abbeduto Leonard

机构信息

a MIND Institute , University of California , Sacramento , CA , USA.

b Department of Psychiatry and Behavioral Sciences , University of California , Sacramento , CA , USA.

出版信息

Dev Neurorehabil. 2018 Jan;21(1):48-63. doi: 10.1080/17518423.2017.1369189. Epub 2017 Sep 28.

DOI:10.1080/17518423.2017.1369189
PMID:28956679
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5986725/
Abstract

A small randomized group design (N = 20) was used to examine a parent-implemented intervention designed to improve the spoken language skills of school-aged and adolescent boys with FXS, the leading cause of inherited intellectual disability. The intervention was implemented by speech-language pathologists who used distance video-teleconferencing to deliver the intervention. The intervention taught mothers to use a set of language facilitation strategies while interacting with their children in the context of shared story-telling. Treatment group mothers significantly improved their use of the targeted intervention strategies. Children in the treatment group increased the duration of engagement in the shared story-telling activity as well as use of utterances that maintained the topic of the story. Children also showed increases in lexical diversity, but not in grammatical complexity.

摘要

采用小型随机分组设计(N = 20)来检验一种由家长实施的干预措施,该干预旨在提高患有脆性X综合征(FXS)的学龄期和青春期男孩的口语技能,脆性X综合征是遗传性智力残疾的主要原因。该干预由言语病理学家实施,他们通过远程视频会议来提供干预。干预教导母亲们在共同讲故事的情境中与孩子互动时使用一系列语言促进策略。治疗组的母亲显著提高了她们对目标干预策略的运用。治疗组的孩子增加了参与共同讲故事活动的时长,以及使用能维持故事主题的话语。孩子们在词汇多样性方面也有所增加,但在语法复杂性方面没有变化。

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