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姑息日间护理中心的优势与挑战:对相关专业人员的定性研究

The Strengths and Challenges of Palliative Day-Care Centers: Qualitative Study With the Professionals Involved.

作者信息

Vandaele Bieke, Chambaere Kenneth, Devisch Ignaas

机构信息

1 Department of Primary Care and Family Medicine, Ghent University, Brussels, Belgium.

2 End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) and Ghent University, Brussels, Belgium.

出版信息

J Palliat Care. 2017 Apr;32(2):55-60. doi: 10.1177/0825859717733833. Epub 2017 Oct 3.

DOI:10.1177/0825859717733833
PMID:28969501
Abstract

BACKGROUND

Palliative day-care centers are a marginal service within the palliative care landscape. Relevant research on the potential and added value of this service model is lacking, and it may therefore be underappreciated.

AIM

To examine how representatives of Belgian palliative day-care centers perceive their strengths and added value, as well as the biggest challenges to their survival.

DESIGN

Qualitative study of individual interviews and an overarching focus group. Data collection was performed from December 2014 to April 2015. Inductive coding was used to extract relevant themes from the verbatim transcripts.

SETTING/PARTICIPANTS: Participants were professional representatives of all 5 Flemish palliative day-care centers: 7 participants for the individual interviews and 6 participants for the focus group.

RESULTS

Five strengths were identified: (1) unique care model, (2) contact with peers in a nonclinical environment, (3) a reliable and competent multiprofessional team, (4) care tailored to the individual, and (5) respite for family caregivers. The most significant challenges were (1) optimizing government funding and (2) achieving sufficiently high occupancy and referral. According to interviewees, this latter challenge was due to the low visibility of the service to professionals and the public, unclear referral criteria, and the psychological threshold for referral among patients and professionals.

CONCLUSIONS

Palliative day-care centers strive to provide unique services for patients with advanced illness. However, negotiating adequate funding and raising referral by changing current perceptions are paramount to unlocking their potential. Scientific analysis of cost utility and patient outcomes associated with their use is necessary.

摘要

背景

姑息日间护理中心在姑息护理领域是一项边缘服务。缺乏关于这种服务模式的潜力和附加值的相关研究,因此它可能未得到充分重视。

目的

探讨比利时姑息日间护理中心的代表如何看待其优势和附加值,以及其生存面临的最大挑战。

设计

对个人访谈和总体焦点小组进行定性研究。数据收集于2014年12月至2015年4月进行。采用归纳编码从逐字记录中提取相关主题。

地点/参与者:参与者是所有5家弗拉芒姑息日间护理中心的专业代表:7名参与者接受个人访谈,6名参与者参加焦点小组。

结果

确定了五个优势:(1)独特的护理模式,(2)在非临床环境中与同行接触,(3)可靠且称职的多专业团队,(4)个性化护理,(5)为家庭照顾者提供喘息机会。最重大的挑战是(1)优化政府资金,(2)实现足够高的入住率和转诊率。据受访者称,后一个挑战是由于该服务在专业人员和公众中的知名度较低、转诊标准不明确以及患者和专业人员转诊的心理门槛所致。

结论

姑息日间护理中心努力为晚期疾病患者提供独特服务。然而,通过改变当前观念来争取足够的资金和提高转诊率对于释放其潜力至关重要。有必要对与其使用相关的成本效用和患者结果进行科学分析。

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