Garne Holm Kristina, Brødsgaard Anne, Zachariassen Gitte, Smith Anthony C, Clemensen Jane
HCA Research, Hans Christian Andersen Children's Hospital, Odense University Hospital, Odense, Denmark.
Paediatric Department, Copenhagen University Hospital Hvidovre, Hvidovre, Denmark.
SAGE Open Med. 2017 Sep 21;5:2050312117731252. doi: 10.1177/2050312117731252. eCollection 2017.
Neonatal homecare delivered during home visits by neonatal nurses is a common method for supporting families of preterm infants following discharge. Telehealth has been introduced for the provision of neonatal homecare, resulting in positive feedback from parents of preterm infants. While the benefits are beginning to be realised, widespread uptake of telehealth has been limited due to a range of logistical challenges. Understanding user requirements is important when planning and developing a clinical telehealth service. We therefore used participatory design to develop a clinical telehealth service for neonatal homecare.
The study adopted a participatory design approach to engage users in the development and design of a new telehealth service. Participatory design embraces qualitative research methods. Creative and technical workshops were conducted as part of the study. Tests of the telehealth service were conducted in the neonatal unit. Participants in this study were former and current parents of preterm infants eligible for neonatal homecare, and clinical staff (medical and nursing) from the neonatal unit. Preterm infants accompanied their parents.
Based on the results obtained during the workshops and subsequent testing, we developed an application (app), which was integrated into the medical record at the neonatal unit. The app was used to initiate videoconferences and chat messages between the family at home and the neonatal unit, and to share information regarding infant growth and well-being.
Results obtained from the workshops and testing demonstrated the importance of involving users when developing new telehealth applications. The workshops helped identify the challenges associated with delivery of the service, and helped instruct the design of a new telehealth service for neonatal homecare based on the needs of parents and clinical staff.
由新生儿护士在家庭访视期间提供的新生儿家庭护理是支持早产儿出院后家庭的常用方法。远程医疗已被引入用于提供新生儿家庭护理，得到了早产儿家长的积极反馈。虽然其益处已开始显现，但由于一系列后勤挑战，远程医疗的广泛应用受到限制。在规划和开发临床远程医疗服务时，了解用户需求很重要。因此，我们采用参与式设计来开发一种用于新生儿家庭护理的临床远程医疗服务。
本研究采用参与式设计方法，让用户参与新远程医疗服务的开发和设计。参与式设计采用定性研究方法。作为研究的一部分，举办了创意和技术研讨会。在新生儿病房对远程医疗服务进行了测试。本研究的参与者包括符合新生儿家庭护理条件的早产儿的前任和现任家长，以及新生儿病房的临床工作人员（医生和护士）。早产儿由其父母陪同。
根据研讨会及后续测试获得的结果，我们开发了一款应用程序（应用），该应用被集成到新生儿病房的病历中。该应用用于在家中的家庭与新生儿病房之间发起视频会议和聊天消息，并分享有关婴儿生长和健康状况的信息。
研讨会和测试的结果表明，在开发新的远程医疗应用时让用户参与很重要。这些研讨会有助于确定与服务提供相关的挑战，并有助于根据家长和临床工作人员的需求指导设计一种新的用于新生儿家庭护理的远程医疗服务。
