Odense University Hospital, Denmark; University of Southern Denmark, Denmark.
Health Informatics J. 2020 Jun;26(2):1237-1252. doi: 10.1177/1460458219876188. Epub 2019 Sep 30.
Kidney transplantation is the treatment of choice for patients with end-stage renal disease, and leads to everyday self-management of this chronic condition. This article aims to provide documentation for a participatory design study of a telehealth solution to improve the kidney transplantation process, and to identify the impact from the different participants in the participatory design study. Through a participatory design approach, a smartphone application (app) was developed for the entire kidney transplantation process together with a workflow for post-transplantation follow-up. A core element in participatory design is user involvement. By way of workshops and laboratory tests, the telehealth solution was developed in close cooperation with patients, their families, healthcare professionals, kidney association representatives, and Information Technology designers. The participatory design approach means that the telehealth solution was designed to be functional in a clinical setting, address patients' needs, and support their self-management.
肾移植是治疗终末期肾病患者的首选方法，可实现对这种慢性疾病的日常自我管理。本文旨在为一项远程医疗解决方案的参与式设计研究提供文件记录，以改善肾移植过程，并确定参与式设计研究中不同参与者的影响。通过参与式设计方法，为整个肾移植过程开发了一个智能手机应用程序（app），并为移植后随访制定了工作流程。参与式设计的核心要素是用户参与。通过研讨会和实验室测试，与患者、他们的家人、医疗保健专业人员、肾脏协会代表和信息技术设计师密切合作开发了远程医疗解决方案。参与式设计方法意味着远程医疗解决方案旨在在临床环境中发挥功能，满足患者的需求，并支持他们的自我管理。
