Amezcua Lilyana, Oksenberg Jorge R, McCauley Jacob L
Department of Neurology, University of Southern California, Keck School of Medicine, USA.
Department of Neurology, University of San Francisco School of Medicine, USA.
Mult Scler J Exp Transl Clin. 2017 Sep 25;3(3):2055217317725103. doi: 10.1177/2055217317725103. eCollection 2017 Jul-Sep.
Self-identified Hispanic/Latino individuals living with multiple sclerosis (MS) in the continental United States (US) are a diverse group that represents different cultural and ancestral backgrounds. A marked variability in the way MS affects various subgroups of Hispanics in the US has been observed. We reviewed and synthesized available data about MS in Hispanics in the US. There are likely a host of multifactorial elements contributing to these observations that could be explained by genetic, environmental, and social underpinnings. Barriers to adequate MS care in Hispanics are likely to include delivery of culturally competent care and social and economic disadvantages. Considerable efforts, including the formation of a national consortium known as the Alliance for Research in Hispanic Multiple Sclerosis (ARHMS), are underway to help further explore these various factors.
在美国大陆患有多发性硬化症(MS)的自我认定为西班牙裔/拉丁裔个体是一个多样化的群体,代表着不同的文化和祖籍背景。人们观察到,MS在美国影响西班牙裔各个亚群体的方式存在显著差异。我们回顾并综合了美国西班牙裔人群中有关MS的现有数据。可能有许多多因素元素导致了这些观察结果,这些因素可以从遗传、环境和社会基础方面来解释。西班牙裔人群获得充分MS护理的障碍可能包括提供具有文化胜任力的护理以及社会和经济劣势。目前正在做出相当大的努力,包括组建一个名为西班牙裔多发性硬化症研究联盟(ARHMS)的全国性联盟,以帮助进一步探索这些各种因素。