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多发性硬化症社区中的多样性、公平性与包容性:行动呼吁。

Diversity, Equity, and Inclusion in the Multiple Sclerosis Community: A Call to Action.

作者信息

Hersh Carrie M, Morrow Sarah A, Williams Mitzi Joi, Amezcua Lilyana, Halper June, Wandersee Katherine

机构信息

From the Lou Ruvo Center for Brain Health, Cleveland Clinic, Las Vegas, NV (CMH).

London Multiple Sclerosis Clinic, University of Western Ontario, London, ON (SAM).

出版信息

Int J MS Care. 2023 Sep-Oct;25(5):199-205. doi: 10.7224/1537-2073.2023-039. Epub 2023 Sep 14.

Abstract

Many medical organizations have begun to confront the longstanding problem of inequalities in health care delivery and the undeniable effect of disparities on health outcomes. The Consortium of Multiple Sclerosis Centers (CMSC) recognizes that disparities affect the lives of many people with multiple sclerosis (MS) and acknowledges the need to address this as an organization. The CMSC recently (1) appointed a task force, (2) conducted a survey of its membership, (3) commissioned this review article and call to action, and (4) formulated a mission statement on diversity, equity, and inclusion (DEI), which was adopted by the CMSC's Board of Governors in March 2023. This paper summarizes recent literature on health care disparities in MS, particularly those relating to race/ethnicity, sexual orientation, and gender identity. It presents findings from CMSC's survey of members' awareness of DEI issues, the need for education and resources for MS care providers, and existing institutional policies on DEI in the members' practice settings. It also presents the task force's recommendations for next steps, which includes the goal of greater diversity in the MS workforce of the future. The CMSC will continue to revisit DEI policies and practices over time with the goal of motivating greater awareness, momentum, and positive changes within the MS community.

摘要

许多医疗组织已开始直面医疗服务中存在已久的不平等问题,以及医疗差异对健康结果产生的不可否认的影响。多发性硬化症中心联盟(CMSC)认识到这些差异影响着许多多发性硬化症(MS)患者的生活,并承认作为一个组织有必要解决这一问题。CMSC最近(1)任命了一个特别工作组,(2)对其成员进行了一项调查,(3)委托撰写了这篇综述文章并发出行动呼吁,(4)制定了一份关于多样性、公平和包容性(DEI)的使命声明,该声明于2023年3月被CMSC董事会采纳。本文总结了近期关于MS医疗差异的文献,特别是那些与种族/族裔、性取向和性别认同相关的差异。它展示了CMSC对成员对DEI问题的认识、对MS护理提供者的教育和资源需求以及成员实践环境中现有DEI制度政策的调查结果。它还展示了特别工作组对下一步措施的建议,其中包括未来MS医疗队伍实现更大多样性的目标。随着时间的推移,CMSC将继续重新审视DEI政策和实践,目标是在MS社区内激发更高的认识、动力和积极变化。

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本文引用的文献

1
Epidemiologic trends of multiple sclerosis in Puerto Rico (2013-2020).波多黎各的多发性硬化症流行病学趋势(2013 - 2020年)
Mult Scler Relat Disord. 2022 Dec;68:104240. doi: 10.1016/j.msard.2022.104240. Epub 2022 Oct 10.
4
Racial disparities in hypertension management among multiple sclerosis patients.多发性硬化症患者高血压管理中的种族差异。
Mult Scler Relat Disord. 2022 Aug;64:103972. doi: 10.1016/j.msard.2022.103972. Epub 2022 Jun 15.
9
Comorbidities require special attention in minorities with multiple sclerosis.
Mult Scler. 2021 Oct;27(12):1811-1813. doi: 10.1177/13524585211037578. Epub 2021 Aug 27.

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