针对严重精神疾病患者非正式照料者的定制干预措施的可行性与可及性：一项试点研究
Feasibility and Accessibility of a Tailored Intervention for Informal Caregivers of People with Severe Psychiatric Disorders: a Pilot Study.
作者信息
Rexhaj Shyhrete, Leclerc Claude, Bonsack Charles, Golay Philippe, Favrod Jérôme
机构信息
Institute of Higher Education and Research in Health Care, University of Lausanne, Lausanne, Switzerland.
Community Psychiatry Service, Department of Psychiatry, University Hospital Centre, Lausanne, Switzerland.
出版信息
Front Psychiatry. 2017 Sep 21;8:178. doi: 10.3389/fpsyt.2017.00178. eCollection 2017.
Abstract
OBJECTIVES
This study aimed to assess the acceptability and feasibility of a new tailored intervention for informal caregivers: the (Together) program.
METHODS
An open pre-post within-subject comparison pilot study was conducted. Twenty-one informal caregivers completed the five-session program. Two measurement tools were used: The Brief Symptom Inventory (BSI) and the Life Orientation Scale (LOT-R).
RESULTS
The results showed that informal caregivers were in need of individual support and were ready to participate in the program independent of the patient's diagnosis or stage of illness. The participants were very satisfied, and 95.4% completed the program. The preliminary results also showed that in five sessions, informal caregivers' Global Severity Index measured by the BSI and their optimism about their future (measured by the LOT-R) were significantly improved.
CONCLUSION
This pilot study provided preliminary results concerning the feasibility and acceptability of the tailored program and indicates the need for a randomized trial. The program is appropriate for both the acute and chronic phases of disease. Individualized brief and useful interventions for informal caregivers may provide more positive outcomes in care.
摘要
目的
本研究旨在评估一种针对非正式照料者的新型定制干预措施（“共同参与”项目）的可接受性和可行性。
方法
开展了一项开放的前后测自身对照试点研究。21名非正式照料者完成了为期五节的“共同参与”项目。使用了两种测量工具：简明症状量表（BSI）和生活取向量表（LOT-R）。
结果
结果显示，非正式照料者需要个性化支持，并且愿意参与“共同参与”项目，而不受患者诊断或疾病阶段的影响。参与者非常满意，95.4%的人完成了该项目。初步结果还显示，在五节课程中，通过BSI测量的非正式照料者的总体严重程度指数以及他们对未来的乐观程度（通过LOT-R测量）都有显著改善。
结论
这项试点研究提供了关于定制“共同参与”项目可行性和可接受性的初步结果，并表明有必要进行随机试验。“共同参与”项目适用于疾病的急性期和慢性期。为非正式照料者提供个性化的简短且有用的干预措施可能会在护理中产生更积极的结果。
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