Moss Karen O, Deutsch Nancy L, Hollen Patricia J, Rovnyak Virginia G, Williams Ishan C, Rose Karen M
J Gerontol Nurs. 2018 Feb 1;44(2):33-40. doi: 10.3928/00989134-20171002-02. Epub 2017 Oct 9.
The purpose of the current study was to examine understanding of end-of-life (EOL) decision-making terminology among family caregivers of African American older adults with dementia. This qualitative descriptive study was part of a larger mixed-methods study from which a subset of caregivers (n = 18) completed interviews. Data were analyzed using descriptive statistics and content analyses guided by methods of qualitative analysis. Caregiver interpretation of EOL decision-making terminology varied between associations before and/or after death. EOL decision making was most often a family decision, based on past experiences, and included reliance on resources such as faith or spirituality and health care providers. Patients and families attach meaning to health care terms that should be aligned with health care providers' understanding of those terms. Results provide insight to improve EOL decision making in this population via tailored interventions for patients, families, and health care providers. [Journal of Gerontological Nursing, 44(2), 33-40.].
本研究的目的是调查患有痴呆症的非裔美国老年人的家庭照顾者对临终（EOL）决策术语的理解。这项定性描述性研究是一项更大的混合方法研究的一部分，其中一部分照顾者（n = 18）完成了访谈。使用描述性统计和以定性分析方法为指导的内容分析对数据进行了分析。照顾者对临终决策术语的解释在死亡前和/或死亡后的关联之间有所不同。临终决策通常是一个基于过去经历的家庭决策，包括对诸如信仰或精神寄托以及医疗保健提供者等资源的依赖。患者和家庭赋予医疗保健术语以意义，这些意义应与医疗保健提供者对这些术语的理解相一致。研究结果为通过针对患者、家庭和医疗保健提供者的量身定制干预措施来改善该人群的临终决策提供了见解。[《老年护理杂志》，44(2)，33 - 40。]
