Miller Emika S, Wills Celia E, Wilson-Lawson Kimberly S, Happ Mary Beth, Tan Alai, Monroe Todd B, Moss Karen O
J Gerontol Nurs. 2025 Jun;51(6):30-37. doi: 10.3928/00989134-20250417-01. Epub 2025 Apr 24.
To describe the perspectives of lower socioeconomic status (SES) former family caregivers of Black persons living with dementia (PLWD) on advance care planning needs and preferences for their care recipients.
Semi-structured interviews were completed with 17 lower SES former family caregivers of Black PLWD. Basic qualitative description was used for these analyses.
Four major themes were identified: (1) , (2) , (3) , and (4) . Former family caregivers also expressed a desire to support current caregivers.
Findings fill a critical gap in the literature by highlighting challenges faced during and after caregiving. Future research should leverage perspectives of former caregivers to assist with improving outcomes for Black caregivers, thereby promoting health equity. [(6), 30-37.].
描述社会经济地位较低的黑人痴呆症患者(PLWD)的前家庭照顾者对其照顾对象的预先护理计划需求和偏好的看法。
对17名社会经济地位较低的黑人PLWD的前家庭照顾者进行了半结构化访谈。这些分析采用基本定性描述。
确定了四个主要主题:(1),(2),(3)和(4)。前家庭照顾者还表达了支持当前照顾者的愿望。
研究结果通过突出照顾期间和之后面临的挑战,填补了文献中的关键空白。未来的研究应利用前照顾者的观点,协助改善黑人照顾者的结果,从而促进健康公平。[(6),30 - 37。]