获得家长同意的豁免：男同性恋、双性恋和酷儿青少年用于健康预防研究的一种策略。
Obtaining waivers of parental consent: A strategy endorsed by gay, bisexual, and queer adolescent males for health prevention research.
机构信息
Duke University School of Nursing, Durham, NC.
Association of American Medical Colleges, Washington, DC.
出版信息
Nurs Outlook. 2018 Mar-Apr;66(2):138-148. doi: 10.1016/j.outlook.2017.09.001. Epub 2017 Sep 18.
Abstract
BACKGROUND
Requiring parental consent in studies with sexual minority youth (SMY) can sometimes be problematic as participants may have yet to disclose their sexual orientation, may not feel comfortable asking parents' permission, and may promote a self-selection bias.
PURPOSE
We discuss rationale for waiving parental consent, strategies to secure waivers from review boards, and present participants' feedback on research without parents' permission.
METHODS
We share our institutional review board proposal in which we made a case that excluding SMY from research violates ethical research principles, does not recognize their autonomy, and limits collection of sexuality data.
DISCUSSION
Standard consent policies may inadvertently exclude youth who are at high risk for negative health outcomes or may potentially put them at risk because of forced disclosure of sexual orientation. Securing a waiver addresses these concerns and allows for rich data, which is critical for providers to have a deeper understanding of their unique sexual health needs.
CONCLUSION
To properly safeguard and encourage research informed by SMY, parental consent waivers may be necessary.
摘要
背景
在涉及性少数青年（SMY）的研究中，要求家长同意有时会出现问题，因为参与者可能尚未透露自己的性取向，可能不愿意向父母征求许可，并且可能会导致自我选择偏差。
目的
我们讨论了免除家长同意的理由，从审查委员会获得豁免的策略，并介绍了参与者对未经父母许可进行的研究的反馈。
方法
我们分享了我们的机构审查委员会提案，其中我们提出了一个案例，即排除 SMY 参加研究违反了伦理研究原则，不承认他们的自主权，并且限制了性行为数据的收集。
讨论
标准的同意政策可能会无意中排除那些处于不良健康结果高风险的青年，或者由于被迫透露性取向而使他们处于潜在的风险之中。获得豁免可以解决这些问题，并允许收集丰富的数据，这对于提供者来说至关重要，可以更深入地了解他们独特的性健康需求。
结论
为了正确保护和鼓励以 SMY 为基础的研究，可能需要家长同意的豁免。
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