Marklund Sonja, Sjödin Eriksson Eva, Lindh Viveca, Saveman Britt-Inger
Department of Nursing, Umeå University, Umeå, Sweden.
Department of Nursing, Umeå University, Umeå, Sweden.
J Pediatr Nurs. 2018 Jan-Feb;38:e59-e65. doi: 10.1016/j.pedn.2017.10.004. Epub 2017 Oct 14.
The study aimed to describe and understand adult family members' experiences of participating in a Family Health Conversation (FamHC) when a child is diagnosed with cancer.
Twelve individual interviews were performed with adult family members who had participated in a FamHC. During the interviews each interviewee was a spokesman for his or her respective family. Thereby the family was included as a system. The interviews were analyzed using a hermeneutic approach.
The analysis resulted in four themes: "To unburden the burden," "Seeing things in a new light," "To be seen the way you are," and "Talking to someone who is both within and alongside." Finally an overarching theme evolved, "To rebalance the situation" revealing the meaning of taking part in the FamHC.
All participants considered the FamHC to be valuable. It was surprising that such a relatively small investment of two family conversations and a closing letter could have such significance for the families in their difficult situation.
With training, clinical nurses can use a well-established structured interview process such as the Family Health Conversation to help family members to gain insight into each other's experiences, which increase their ability to cope and regain control.
本研究旨在描述和理解当孩子被诊断患有癌症时，成年家庭成员参与家庭健康对话（FamHC）的经历。
对12名参与过FamHC的成年家庭成员进行了个人访谈。在访谈过程中，每位受访者都是其各自家庭的发言人。因此，家庭被作为一个系统纳入研究。采用诠释学方法对访谈进行分析。
分析得出四个主题：“减轻负担”、“以新视角看待事物”、“被如实看待”以及“与身处其中且相伴左右的人交谈”。最后形成了一个总体主题“重新平衡局面”，揭示了参与FamHC的意义。
所有参与者都认为FamHC很有价值。令人惊讶的是，这样相对较少的投入，即两次家庭对话和一封结束语信件，对于处于困境中的家庭竟能有如此重大的意义。
通过培训，临床护士可以运用诸如家庭健康对话这样成熟的结构化访谈流程，帮助家庭成员深入了解彼此的经历，从而增强他们应对和重新掌控局面的能力。
