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2
NICU infant health severity and family outcomes: a systematic review of assessments and findings in psychosocial research.NICU 婴儿健康严重程度和家庭结局:心理社会研究中评估和发现的系统评价。
J Perinatol. 2019 Feb;39(2):156-172. doi: 10.1038/s41372-018-0282-9. Epub 2018 Dec 4.
3
Fathers' Stress in a Neonatal Intensive Care Unit.新生儿重症监护病房中父亲的压力
Adv Neonatal Care. 2018 Oct;18(5):413-422. doi: 10.1097/ANC.0000000000000503.
4
Fathers' Stress in the Neonatal Intensive Care Unit: A Systematic Review.新生儿重症监护病房中父亲的压力:一项系统综述。
Adv Neonatal Care. 2018 Apr;18(2):105-120. doi: 10.1097/ANC.0000000000000472.
5
What is hindering research on psychological aspects of fathers of premature infants?是什么阻碍了对早产儿父亲心理方面的研究?
Minerva Pediatr. 2018 Apr;70(2):204-206. doi: 10.23736/S0026-4946.16.04618-1.
6
Antenatal Consultations at Extreme Prematurity: A Systematic Review of Parent Communication Needs.极早产儿的产前咨询:父母沟通需求的系统评价。
J Pediatr. 2018 May;196:109-115.e7. doi: 10.1016/j.jpeds.2017.10.067. Epub 2017 Dec 6.
7
Family Health Conversations at a Pediatric Oncology Center - A Way for Families to Rebalance the Situation.儿科肿瘤中心的家庭健康对话——家庭重新平衡局面的一种方式。
J Pediatr Nurs. 2018 Jan-Feb;38:e59-e65. doi: 10.1016/j.pedn.2017.10.004. Epub 2017 Oct 14.
8
Ethical considerations when conducting joint interviews with close relatives or family: an integrative review.与近亲或家人进行联合访谈时的伦理考量:一项综合综述。
Scand J Caring Sci. 2018 Jun;32(2):515-526. doi: 10.1111/scs.12535. Epub 2017 Oct 10.
9
Health-promoting conversations-A novel approach to families experiencing critical illness in the ICU environment.促进健康的对话——一种在 ICU 环境中为经历重病的家庭提供服务的新方法。
J Clin Nurs. 2018 Feb;27(3-4):631-639. doi: 10.1111/jocn.13969.
10
Methodological challenges in qualitative content analysis: A discussion paper.定性内容分析中的方法学挑战:一篇讨论论文。
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父母在有需要新生儿重症监护的孩子后进行家庭健康对话的体验。

Parents' experiences of family health conversations after having a child in need of neonatal intensive care.

机构信息

Clinical Training Center, Region Kalmar County, Kalmar, Sweden.

School of Health and Caring Sciences, Linnaeus University, Växjö, Sweden.

出版信息

Scand J Caring Sci. 2021 Dec;35(4):1269-1277. doi: 10.1111/scs.12945. Epub 2020 Dec 18.

DOI:10.1111/scs.12945
PMID:33336821
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9540891/
Abstract

BACKGROUND

When a newborn child requires neonatal intensive care, it is often the beginning of a journey of stress and worry for the parents. Such situations could cause difficulties in problem-solving and communication within the family and result in decreased family functioning. Studies have shown that nurse-led interventions in the form of Family Health Conversations promote family's well-being and functioning and strengthen their relationships. However, this model has not previous been used and evaluated with families who have a child in need of neonatal intensive care.

AIM

To describe parents' experiences of participating in Family Health Conversations after having a child in need of neonatal intensive care.

METHOD

Family interviews were conducted with 12 families from three neonatal intensive care units in southern Sweden, six months after a Family Health Conversations intervention. Data were analysed using qualitative content analysis.

FINDINGS

The parents experienced the Family Health Conversations as an opportunity to co-create a comprehensive picture of what had happened after their child was born. Parents shared their experiences of the Family Health Conversations in terms of feeling validated and strengthened as individuals, as a couple, and as a family. They found the conversations to be supportive to their well-being and to processing experiences and becoming equipped for the future. The parents reported that it was valuable to talk with conversational leaders who had knowledge in neonatal care and who thereby understood what the parents were talking about. This provided a different type of support compared with other conversational contacts.

CONCLUSION

These results highlight the importance of having an early onset of family conversations in order to help the parents to cope with their challenges and improve their well-being.

摘要

背景

当新生儿需要重症监护时,往往会给父母带来压力和担忧。这种情况可能会导致家庭内部解决问题和沟通困难,从而降低家庭功能。研究表明,以家庭健康对话形式开展的护士主导干预措施可促进家庭的幸福和功能,并加强其关系。然而,这种模式尚未在有新生儿需要重症监护的家庭中使用和评估过。

目的

描述父母参与新生儿重症监护后家庭健康对话的体验。

方法

在瑞典南部的三个新生儿重症监护病房,对 12 个家庭进行了家庭访谈,这些家庭在接受家庭健康对话干预六个月后接受了访谈。使用定性内容分析对数据进行了分析。

结果

父母将家庭健康对话视为共同描绘孩子出生后发生的事情的机会。父母从个人、夫妻和家庭的角度分享了他们对家庭健康对话的体验,他们感到自己得到了认可和支持。他们发现这些对话对他们的幸福感、处理经历和为未来做好准备都很有帮助。父母报告说,与有新生儿护理知识并理解他们谈话内容的对话领导交谈很有价值。这提供了一种与其他对话接触不同的支持。

结论

这些结果强调了尽早开展家庭对话的重要性,以帮助父母应对挑战并提高他们的幸福感。