Pyykko Ilmari, Manchaiah Vinaya, Kentala Erna, Levo Hilla, Juhola Martti
Hearing and Balance Research Unit, Department of Otolaryngology, University of Tampere, Finland.
Department of Speech and Hearing Sciences, Lamar University, Beaumont, TX.
Am J Audiol. 2017 Dec 12;26(4):496-506. doi: 10.1044/2017_AJA-16-0068.
In this article, we present the details and the pilot outcome of an Internet-based self-help program for Ménière's disease (MD).
The Norton-Kaplan model is applied to construct a strategic, person-focused approach in the enablement process. The program assesses the disorder profile and diagnosis. In the therapeutic component of the program, the participant defines vision and time frame, inspects confounding factors, determines goals, establishes a strategy, and starts to work on the important problems caused by the disorder. The program works interactively, utilizes collaboration with significant others, and enhances positive thinking. Participants took part in an Internet-based self-help program. Data were collected interactively using open-ended and structured questionnaires on various disease-specific and general health aspects. The pilot outcome of 41 patients with MD was evaluated.
The analysis of the pilot data showed statistically significant improvement in their general health-related quality of life (p < .001). Also, the outcome of the Posttraumatic Growth Inventory (Cann et al., 2010) showed small to moderate change as a result of the intervention.
The Internet-based self-help program can be helpful in the rehabilitation of patients with MD to supplement medical therapy.
在本文中，我们介绍了一项针对梅尼埃病（MD）的基于互联网的自助计划的详细内容和初步成果。
应用诺顿-卡普兰模型在赋能过程中构建一种以患者为中心的战略方法。该计划评估疾病概况和诊断。在计划的治疗部分，参与者定义愿景和时间框架，检查混杂因素，确定目标，制定策略，并开始着手解决由该疾病引起的重要问题。该计划以互动方式运作，利用与重要他人的协作，并增强积极思维。参与者参加了基于互联网的自助计划。使用关于各种疾病特定和一般健康方面的开放式和结构化问卷以互动方式收集数据。对41例梅尼埃病患者的初步结果进行了评估。
对初步数据的分析表明，他们与总体健康相关的生活质量有统计学意义的改善（p <.001）。此外，创伤后成长量表（Cann等人，2010年）的结果显示，干预后有小到中等程度的变化。
基于互联网的自助计划有助于梅尼埃病患者的康复，以补充药物治疗。
