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澳大利亚医生对与临终决策相关的法律的了解和遵守情况:对 LGBTI 患者的影响。

Australian doctors' knowledge of and compliance with the law relating to end-of-life decisions: implications for LGBTI patients.

机构信息

a ASLaRC Aged Services Unit , Southern Cross University , Bilinga, Gold Coast , Queensland , Australia.

b Faculty of Law, Australian Centre for Health Law Research , Queensland University of Technology , Brisbane , Queensland , Australia.

出版信息

Cult Health Sex. 2018 Aug;20(8):845-857. doi: 10.1080/13691058.2017.1385854. Epub 2017 Oct 25.

Abstract

In most developed countries, competent patients have the legal right to refuse any medical treatment; Advance Care Planning mechanisms extend this right to non-competent patients. However, some groups, including lesbian, gay, bisexual, transgender and intersex (LGBTI) people, risk their wishes not being respected if they lose capacity, more than others. Little is known about medical practitioners' knowledge of, or attitudes to, the law in this area, especially in relation to LGBTI people, or how the law influences their decision-making. An Australian postal survey explored knowledge and attitudes of medical specialists to legal issues relating to withdrawing/ withholding life-sustaining treatment from adults without capacity. One scenario (the focus of this paper) asked which of four plausible substitute decision-makers, including a same-sex partner, had the legal authority to make such decisions. The overall response rate was 32% (867/2702). Less than one-third of respondents correctly identified the same-sex partner as the legally authorised decision-maker. LGBTI people face multiple obstacles to having their end-of-life wishes respected. Where healthcare providers are also ignorant of the partner's legal right to make such decisions, the problem is compounded. Improved legal education for clinicians and promotion of educational resources for members of the LGBTI community is needed.

摘要

在大多数发达国家,有能力的患者享有拒绝任何医疗的合法权利;而预先医疗指示机制则将这一权利扩展到了无行为能力的患者。然而,如果某些群体(包括女同性恋、男同性恋、双性恋、跨性别和间性人)丧失了行为能力,他们的意愿可能无法得到尊重,而这些群体比其他人更有可能面临这种情况。目前,人们对医疗从业者在这一领域的法律知识或态度,尤其是与女同性恋、男同性恋、双性恋、跨性别和间性人相关的法律知识或态度,以及法律如何影响他们的决策知之甚少。一项澳大利亚邮政调查探讨了医学专家对与从无行为能力的成年人撤回/停止维持生命的治疗相关的法律问题的了解和态度。有一个情景(本文的重点)询问了四个可能的替代决策人(包括同性伴侣)中,谁具有合法权力做出此类决定。总的回应率为 32%(867/2702)。不到三分之一的受访者正确地将同性伴侣认定为具有法律授权的决策者。女同性恋、男同性恋、双性恋、跨性别和间性人在尊重他们的临终意愿方面面临着多重障碍。如果医疗保健提供者对伴侣做出此类决定的合法权利一无所知,问题就会更加复杂。需要为临床医生提供更好的法律教育,并为女同性恋、男同性恋、双性恋、跨性别和间性人社区的成员推广教育资源。

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