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多病种干预研究中的患者报告结局:范围综述。

Patient-reported outcomes in multimorbidity intervention research: A scoping review.

机构信息

Faculté de médecine et des sciences de la santé, Université de Sherbrooke, Québec, Canada.

Département des sciences de la santé, Université du Québec à Chicoutimi, Québec, Canada; Département de médecine de famille et de médecine d'urgence, Université de Sherbrooke, Québec, Canada; Centre intégré universitaire de santé et de services sociaux du Saguenay-Lac-Saint-Jean, Chicoutimi, Québec, Canada.

出版信息

Int J Nurs Stud. 2018 Jan;77:145-153. doi: 10.1016/j.ijnurstu.2017.09.016. Epub 2017 Sep 29.

DOI:10.1016/j.ijnurstu.2017.09.016
PMID:29080440
Abstract

BACKGROUND

Although chronic disease management interventions for persons with multimorbidity are offered in primary healthcare, a strong evidence base supporting such interventions is still lacking. Part of this problem is due to the heterogeneity in the use of outcome measures in multimorbidity intervention research.

OBJECTIVES

This review aims to describe and map outcome measurement in chronic disease management intervention research for people with multimorbidity.

DESIGN

A scoping review of multiple chronic disease management intervention studies published between January 1996 and July 2017.

DATA SOURCES

Search of the academic literature was undertaken in the MEDLINE, CINAHL and PsycINFO electronic databases.

RESULTS

Twenty-two studies were identified, 56 outcomes were reported, grouped into 18 categories and six emergent domains of outcomes: General health, Psychosocial, Disease management, Health-related behaviours, Functional and Health services. Quality of life, health-related behaviors and self-efficacy were the most reported outcome categories, while patient satisfaction, communication with providers and adverse outcomes were rarely reported.

CONCLUSIONS

The mapping and description brought to light the large heterogeneity of outcome categories and measures. The organization proposed in this paper could contribute to improved outcome selection for research, care and policy and lead to the creation of adapted patient-related outcome measures.

摘要

背景

尽管在初级医疗保健中为患有多种疾病的人提供了慢性病管理干预措施,但仍缺乏强有力的证据支持这些干预措施。部分问题是由于在多种疾病干预研究中使用结果测量的异质性。

目的

本综述旨在描述和绘制患有多种疾病的人慢性疾病管理干预研究中的结果测量。

设计

1996 年 1 月至 2017 年 7 月期间进行的多种慢性疾病管理干预研究的范围综述。

资料来源

在 MEDLINE、CINAHL 和 PsycINFO 电子数据库中进行了学术文献搜索。

结果

确定了 22 项研究,报告了 56 个结果,分为 18 类和 6 个结果领域:一般健康、心理社会、疾病管理、健康相关行为、功能和卫生服务。报告的结果类别最多的是生活质量、健康相关行为和自我效能,而患者满意度、与提供者的沟通和不良后果则很少报告。

结论

映射和描述揭示了结果类别和测量的高度异质性。本文提出的组织可能有助于改善研究、护理和政策的结果选择,并导致适应患者相关结果测量的创建。

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