van der Aa Maartje J, van den Broeke Jennifer R, Stronks Karien, Plochg Thomas
Department of Health Services Research, Maastricht University, Maastricht, The Netherlands.
Department of Public Health, Academic Medical Center, University of Amsterdam, The Netherlands.
J Comorb. 2017 Jan 27;7(1):11-21. doi: 10.15256/joc.2017.7.97. eCollection 2017.
The number of patients with multimorbidity (two or more conditions) is increasing. Observational research has shown that having multiple health problems is associated with poorer outcomes in terms of health, quality of care, and costs. Thus, it is imperative to understand how patients with multimorbidity experience their healthcare process. Insight into patient experiences can be used to tailor healthcare provision specifically to the needs of patients with multimorbidity.
To synthesize self-reported experiences with the healthcare process of patients with multimorbidity, and identify overarching themes.
A scoping literature review that evaluates both qualitative and quantitative studies published in PubMed, Embase, MEDLINE, and PsycINFO. No restrictions were applied to healthcare setting or year of publication. Studies were included if they reported experiences with the healthcare process of patients with multimorbidity. Patient experiences were extracted and subjected to thematic analysis (interpretative), which revealed overarching themes by mapping their interrelatedness.
Overall, 22 empirical studies reported experiences of patients with multimorbidity. Thematic analysis identified 12 themes within these studies. The key overarching theme was the experience of a lack of holistic care. Patients also experienced insufficient guidance from healthcare providers. Patients also perceived system-related issues such as problems stemming from poor professional-to-professional communication.
Patients with multimorbidity experience a range of system- and professional-related issues with healthcare delivery. This overview illustrates the diversity of aspects that should be considered in designing healthcare services for patients with multimorbidity.
患有多种疾病(两种或更多种病症)的患者数量正在增加。观察性研究表明,存在多种健康问题与在健康、护理质量和成本方面较差的结果相关。因此,了解患有多种疾病的患者如何体验其医疗过程势在必行。对患者体验的洞察可用于专门根据患有多种疾病患者的需求调整医疗服务。
综合患有多种疾病的患者对医疗过程的自我报告体验,并确定总体主题。
一项范围综述,评估发表在PubMed、Embase、MEDLINE和PsycINFO上的定性和定量研究。对医疗环境或发表年份不设限制。如果研究报告了患有多种疾病的患者对医疗过程的体验,则纳入研究。提取患者体验并进行主题分析(解释性),通过绘制其相互关联性揭示总体主题。
总体而言,22项实证研究报告了患有多种疾病的患者的体验。主题分析在这些研究中确定了12个主题。关键的总体主题是缺乏整体护理的体验。患者还体验到医疗服务提供者的指导不足。患者还察觉到与系统相关的问题,例如因专业人员之间沟通不畅而产生的问题。
患有多种疾病的患者在医疗服务提供方面经历了一系列与系统和专业相关的问题。本综述说明了在为患有多种疾病的患者设计医疗服务时应考虑的各方面的多样性。