a Personal Social Services Research Unit, Division of Population Health, Health Services Research and Primary Care , University of Manchester , Manchester , UK.
b Centre For Health Economics, Division of Population Health, Health Services Research and Primary Care , University of Manchester , Manchester , UK.
Aging Ment Health. 2019 Jan;23(1):60-68. doi: 10.1080/13607863.2017.1394441. Epub 2017 Nov 1.
To examine the relative importance of different home support attributes from the perspective of carers of people with later-stage dementia.
Preferences from 100 carers, recruited through carers' organisations, were assessed with a Discrete Choice Experiment (DCE) survey, administered online and by paper questionnaire. Attributes were informed by an evidence synthesis and lay consultations. A conditional logit model was used to estimate preference weights for the attributes within a home support 'package'.
The most preferred attributes were 'respite care, available regularly to fit your needs' (coefficient 1.29, p = < 0.001) and 'home care provided regularly for as long as needed' (coefficient 0.93, p = < 0.001). Cost had a significant effect with lower cost packages preferred. Findings were similar regardless of the method of administration, with respite care considered to be the most important attribute for all carers. Carers reported that completing the DCE had been a positive experience; however, feedback was mixed overall.
These carer preferences concur with emerging evidence on home support interventions for dementia. Respite care, home care and training on managing difficulties provided at home are important components. Carers' preferences revealed the daily challenges of caring for individuals with later stage dementia and the need for tailored and specialised home support.
从晚期痴呆患者照顾者的角度探讨不同居家支持属性的相对重要性。
通过照顾者组织招募了 100 名照顾者，使用离散选择实验（DCE）调查评估他们的偏好，该调查通过在线和纸质问卷进行。属性信息来源于证据综合和公众咨询。使用条件逻辑回归模型在居家支持“套餐”内估算属性的偏好权重。
最受欢迎的属性是“定期提供、可根据您的需求安排的临时照料（系数 1.29，p<0.001）”和“定期提供、按需提供的家庭护理（系数 0.93，p<0.001）”。成本具有显著影响，成本较低的套餐更受欢迎。无论采用何种管理方式，调查结果都相似，所有照顾者都认为临时照料是最重要的属性。照顾者报告说，完成 DCE 是一次积极的体验；然而，总体反馈好坏参半。
这些照顾者的偏好与新兴的痴呆症居家支持干预证据相符。临时照料、家庭护理和家庭管理方面的培训是重要的组成部分。照顾者的偏好揭示了照顾晚期痴呆患者的日常挑战，以及对定制和专门化居家支持的需求。
