Donnelly Paula Sinead, Mohan Divya, Penton Hannah, Wilson Emily, Boeri Marco
Queen's University Belfast, Belfast, UK.
Patient Centered Outcomes, Open Health HEOR and Market Access, 20 Old Bailey, London, EC4M 7AN, UK.
Patient. 2025 Jun 2. doi: 10.1007/s40271-025-00745-7.
Health preference research plays a critical role in shaping healthcare policy and decision-making; however the underrepresentation of underserved populations challenges the validity and reliability of preference estimates. Despite efforts to diversify recruitment, health preference studies often have limited demographic diversity and non-representative sampling, leading to potentially biased findings that overlook the preferences of underserved populations. We discuss the importance of engaging underserved populations in health preference research from both ethical and research perspectives. We identify key challenges to the inclusion of underserved groups and outline strategies to address them, illustrating these with examples where possible. By prioritising inclusive and flexible methodologies, health preference researchers can generate more representative data, ensuring that estimates reflect the diverse needs and values of all populations. Ultimately, these efforts will support the development of more equitable, evidence-based, and impactful healthcare policies.
健康偏好研究在塑造医疗政策和决策方面发挥着关键作用;然而,弱势群体代表性不足对偏好估计的有效性和可靠性构成了挑战。尽管努力实现招募的多样化,但健康偏好研究的人口统计学多样性往往有限,抽样也不具有代表性,导致可能存在偏差的研究结果,忽视了弱势群体的偏好。我们从伦理和研究角度讨论让弱势群体参与健康偏好研究的重要性。我们确定了纳入弱势群体的关键挑战,并概述应对这些挑战的策略,并尽可能举例说明。通过优先采用包容性和灵活性方法,健康偏好研究人员可以生成更具代表性的数据,确保估计反映所有人群的不同需求和价值观。最终,这些努力将支持制定更公平、基于证据且有影响力的医疗政策。