Grandpierre Viviane, Fitzpatrick Elizabeth M, Na Eunjung, Mendonca Oreen
University of Ottawa.
Children's Hospital of Eastern Ontario Research Institute.
J Deaf Stud Deaf Educ. 2018 Apr 1;23(2):140-147. doi: 10.1093/deafed/enx049.
Following the establishment of newborn hearing screening programs, age of identification and length of time before receiving interventions has been reduced for children, including those with milder degrees of hearing loss who were previously not identified until school age. This population of early-identified children requires new support programs for parents. Although literature is emerging on how parents experience the initial years, there is limited information on support needs during early school years. The objectives were to gain insights into parents' experiences with services during the early period of identification until early school years, as well as their perceptions of the consequences of hearing loss on their child's overall development. A qualitative research design informed by Interpretive Description was employed. Individual semi-structured interviews were conducted with 12 parents of children identified with mild hearing loss. Transcripts were analyzed using a constant comparative method. Four themes emerged from the data: early experiences with services and hearing technology, effects of hearing loss on social functioning, effects of hearing loss on language and academics, and experiences in early school years. From parents' perspectives, more support during the early school years is needed to help ensure academic success.
随着新生儿听力筛查项目的建立,儿童的确诊年龄和接受干预前的时间长度都有所缩短,包括那些听力损失程度较轻、以前直到学龄才被确诊的儿童。这群早期确诊的儿童需要为家长提供新的支持项目。尽管关于家长如何度过最初几年的文献不断涌现,但关于学龄早期支持需求的信息却很有限。研究目的是深入了解家长在孩子确诊初期到学龄早期这段时间内对服务的体验,以及他们对听力损失对孩子整体发展影响的看法。采用了基于诠释性描述的定性研究设计。对12名确诊为轻度听力损失儿童的家长进行了个人半结构化访谈。使用持续比较法对访谈记录进行了分析。数据中出现了四个主题:服务和听力技术的早期体验、听力损失对社交功能的影响、听力损失对语言和学业的影响以及学龄早期的经历。从家长的角度来看,学龄早期需要更多支持以帮助确保学业成功。