School of Psychology & Centre for Pain Research, National University of Ireland, Galway, Ireland.
Department of Psychology, West Virginia University, Morgantown, WV, USA.
Syst Rev. 2017 Nov 2;6(1):221. doi: 10.1186/s13643-017-0619-z.
This systematic review is the first step in a study investigating the resilience methods and processes in families of children with juvenile idiopathic arthritis. In particular, this review will focus on chronic or persistent pain, as a common symptom of juvenile idiopathic arthritis, which is the most common rheumatic disease in childhood. The experience of persistent pain can add to the functional disability associated with juvenile idiopathic arthritis. Resilience has relevance to all areas of paediatric psychology, and targeted attention to child, sibling, and parent strengths within the context of paediatric chronic pain and juvenile idiopathic arthritis in particular will augment the field on numerous levels. The objective is to determine which resilience processes are associated with a favourable quality of life in terms of academic, communication, emotional, interpersonal, physical, psychological, and social well-being in families of children with chronic pain associated with JIA.
METHODS/DESIGN: This systematic review will be conducted and reported in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses statement and the PRESS (Peer Review of Electronic Search Strategies) guideline. Longitudinal, cross-sectional, and treatment studies written in English will be included, as will grey literature (i.e. conference abstracts and dissertations). Studies involving participants who are 6-18 years of age, have been diagnosed with juvenile idiopathic arthritis, are experiencing chronic pain, and are currently undergoing treatment will be included regardless of sex, arthritis type, and type of treatment. Studies including siblings who are 6-18 years of age and the patient's parents will be included.
Research exploring resilience within the adult population is accruing. Shifting our focus to protective factors of resilience in the context of paediatric chronic pain, specifically juvenile idiopathic arthritis, is a novel and promising pursuit that has the potential to optimize and inform future clinical practice and interventions. A better understanding of the role of reliance in family adaptation will facilitate the development of more effective treatment approaches and lay the foundation for more effective self-management in paediatric chronic pain.
This protocol is registered with the International Prospective Register of Systematic Reviews (PROSPERO) database (registration: CRD42016047226).
本系统评价是研究儿童幼年特发性关节炎（JIA）患者家庭韧性方法和过程的第一步。特别是，本综述将重点关注慢性或持续性疼痛，因为它是 JIA 的一种常见症状，也是儿童中最常见的风湿性疾病。持续性疼痛的经历会增加与 JIA 相关的功能障碍。韧性与儿科心理学的所有领域都相关，在儿科慢性疼痛和 JIA 的背景下，特别针对儿童、兄弟姐妹和父母的优势进行有针对性的关注，将在多个层面上增强该领域。目的是确定哪些韧性过程与儿童慢性疼痛相关的 JIA 患者家庭的生活质量有关，包括学业、沟通、情感、人际关系、身体、心理和社会福祉。
方法/设计：本系统评价将按照系统评价和荟萃分析报告的首选报告项目以及电子搜索策略同行评审（PRESS）指南进行并报告。将纳入以英语撰写的纵向、横断面和治疗研究，以及灰色文献（即会议摘要和论文）。研究对象为年龄在 6-18 岁之间、已被诊断为幼年特发性关节炎、正在经历慢性疼痛且正在接受治疗的参与者，无论性别、关节炎类型和治疗类型如何，均将被纳入。包括年龄在 6-18 岁之间的兄弟姐妹和患者父母的研究将被纳入。
探索成年人韧性的研究正在增加。将我们的注意力转移到儿科慢性疼痛（特别是幼年特发性关节炎）背景下的韧性保护因素上是一种新颖且有前途的追求，有可能优化和为未来的临床实践和干预措施提供信息。更好地了解家庭适应中的依赖作用将有助于开发更有效的治疗方法，并为儿科慢性疼痛的更有效的自我管理奠定基础。
本方案在国际前瞻性系统评价注册库（PROSPERO）中注册（注册号：CRD42016047226）。
