HealthUnlocked, London, United Kingdom.
HealthUnlocked, London, United Kingdom.
Clin Ther. 2017 Nov;39(11):2181-2188. doi: 10.1016/j.clinthera.2017.10.004. Epub 2017 Oct 31.
To date, social media has been used predominantly by the pharmaceutical industry to market products and to gather feedback and comments on products from consumers, a process termed social listening. However, social media has only been used cautiously in the drug development cycle, mainly because of regulations, restrictions on engagement with patients, or a lack of guidelines for social media use from regulatory bodies. Despite this cautious approach, there is a clear drive, from both the industry and consumers, for increased patient participation in various stages of the drug development process. The authors use the example of HealthUnlocked, one of the world's largest health networks, to illustrate the potential applications of online health communities as a means of increasing patient involvement at various stages of the drug development process. Having identified the willingness of the user population to be involved in research, numerous ways to engage users on the platform have been identified and explored. This commentary describes some of these approaches and reports how online health networks that encourage people to share their experiences in managing their health can, in turn, enable rapid patient engagement for clinical research within the constraints of industry regulation.
迄今为止，社交媒体主要被制药行业用于营销产品，并从消费者那里收集对产品的反馈和意见，这一过程被称为社会倾听。然而，社交媒体在药物开发周期中仅被谨慎使用，主要是因为监管规定、与患者互动的限制，或监管机构缺乏社交媒体使用指南。尽管采取了这种谨慎的方法，但行业和消费者都明显希望增加患者在药物开发过程的各个阶段的参与度。作者以全球最大的健康网络之一 HealthUnlocked 为例，说明了在线健康社区作为增加患者在药物开发过程各个阶段参与度的一种手段的潜在应用。在确定了用户群体参与研究的意愿后，已经确定并探索了在平台上吸引用户的多种方式。本评论描述了其中一些方法，并报告了鼓励人们分享管理健康经验的在线健康网络如何在行业监管的限制下，为临床研究实现快速的患者参与。
