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一位来自残疾权益倡导、工程学与学术界交叉领域的社区参与式研究者的思考。

Reflections of a community-based participatory researcher from the intersection of disability advocacy, engineering, and the academy.

作者信息

Raymaker Dora M

机构信息

Portland State University, Portland, OR, USA.

出版信息

Action Res (Lond). 2017 Sep;15(3):258-275. doi: 10.1177/1476750316636669. Epub 2016 Mar 14.

Abstract

This article uses an evocative autoethnographic approach to explore the experience of being an insider-researcher in a community-based participatory research setting. Taking a holistic perspective and using the form of narrative story-telling, I examine the dynamics between the typically marginalizing (but sometimes empowering) experience of being an autistic woman and the typically privileging (but sometimes oppressive) experience of being an engineering professional, during a time of career upheaval. Themes of motivations and mentors, adversity from social services and the academy, belonging, the slipperiness of intersectional positioning, feedback cycles of opportunity, dichotomies of competence and inadequacy, heightened stakes, and power and resistance are explored through the narrative. While primarily leaving the narrative to speak for itself per the qualitative approach taken, the article concludes with a discussion of how the personal experiences described relate both to the broader work of insider-researchers within disability-related fields, and to misconceptions about self-reflection and capacity for story-telling in individuals on the autism spectrum.

摘要

本文采用一种引人入胜的自我民族志方法,来探究在基于社区的参与式研究环境中成为内部研究者的经历。我从整体视角出发,运用叙事故事的形式,审视在职业动荡时期,身为自闭症女性通常被边缘化(但有时也能获得赋权)的经历与身为工程专业人士通常享有特权(但有时也会受到压迫)的经历之间的动态关系。通过叙事探讨了动机与导师、来自社会服务机构和学术界的逆境、归属感、交叉身份定位的不确定性、机会的反馈循环、能力与不足的二分法、更高的风险以及权力与抵抗等主题。虽然根据所采用的定性方法,主要让叙事自行表达观点,但文章最后讨论了所描述的个人经历如何既与残疾相关领域内部研究者的更广泛工作相关,又与对自闭症谱系个体自我反思和讲故事能力的误解相关。

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