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自闭症谱系障碍和唐氏综合征患者青少年兄弟姐妹的自我报告压力。

Self-reported stress among adolescent siblings of individuals with autism spectrum disorder and Down syndrome.

机构信息

Virginia Tech, USA.

出版信息

Autism. 2019 Jan;23(1):112-122. doi: 10.1177/1362361317722432. Epub 2017 Nov 3.

Abstract

Despite the prevalence of studies showing increased stress among mothers of individuals with autism spectrum disorders, few studies have examined general stress among typically developing siblings. This study used an online survey to compare the levels of self-reported stress between adolescent siblings of individuals with autism spectrum disorder and Down syndrome. Sibling of individuals with autism reported significantly more overall stress than did siblings of individuals with Down syndrome, as well as more stress specifically attributed to the brother/sister with autism. The two groups did not differ on perceived social support from family and friends. In linear regression models, the disability group (autism vs Down syndrome) was significantly related to sibling stress above and beyond target child behavior problems, perceived social support, and demographic factors. These results help shed light on the daily experiences of adolescent siblings of individuals with autism and call for more research into potential interventions to address increased stress levels.

摘要

尽管有大量研究表明自闭症谱系障碍患者的母亲压力增加,但很少有研究关注发育正常的兄弟姐妹的一般压力。本研究使用在线调查比较了自闭症谱系障碍和唐氏综合征患者青少年兄弟姐妹的自我报告压力水平。自闭症患者的兄弟姐妹报告的总体压力明显高于唐氏综合征患者的兄弟姐妹,并且自闭症兄弟姐妹的压力更大。这两组在家庭和朋友的感知社会支持方面没有差异。在线性回归模型中,残疾组(自闭症与唐氏综合征)与兄弟姐妹的压力显著相关,超出了目标儿童行为问题、感知社会支持和人口统计学因素的影响。这些结果有助于了解自闭症患者青少年兄弟姐妹的日常经历,并呼吁更多研究潜在的干预措施来解决压力水平升高的问题。

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