Gardsten Cecilia, Mörtberg Christina, Blomqvist Kerstin
School of Health and Society, Kristianstad University, SE-291 88 Kristianstad, Sweden.
Department of Informatics, Linnaeus University, Vaxjo, Sweden.
Health Technol (Berl). 2017;7(2):197-206. doi: 10.1007/s12553-016-0176-9. Epub 2017 Jan 11.
This paper reports the wishes and needs of people with type 2 diabetes (T2DM) for a future information and communication technology (ICT) self-management service to help manage their condition and their everyday life. Diabetes is a chronic disease affecting more and more people and placing increasing demands on health care. The self-management of diabetes includes instrumental and, decision-making skills and skills in managing daily activities, which may be supported by an ICT service. In this study we used a participatory design including two sessions of Future Workshop (FW) as part of a larger research project on the self-management of diabetes. Adults with type 2 diabetes participated in two FW sessions in which their expressed wishes and needs for an ICT service all fell under the broad category of Acceptance of the diagnosis, with three other suggestions; Trust in partnerships, Communication, and Individualized information. The participants' experience of the FW as a democratic process and their appreciation of mutual learning contributed to these results, which are consistent with the aims of person-centred care.
本文报告了2型糖尿病（T2DM）患者对未来信息通信技术（ICT）自我管理服务的愿望和需求，该服务旨在帮助他们管理病情和日常生活。糖尿病是一种影响着越来越多人的慢性疾病，对医疗保健的需求也日益增加。糖尿病的自我管理包括工具性技能、决策技能以及日常活动管理技能，而ICT服务可能会对此提供支持。在本研究中，作为一个关于糖尿病自我管理的大型研究项目的一部分，我们采用了参与式设计，其中包括两场未来研讨会（FW）。患有2型糖尿病的成年人参加了两场FW研讨会，他们对ICT服务表达的愿望和需求都属于“接受诊断”这一广泛类别，此外还有其他三条建议：信任伙伴关系、沟通和个性化信息。参与者将FW体验为一个民主过程，并且赞赏相互学习，这些因素促成了这些结果，而这些结果与以患者为中心的护理目标是一致的。
