先天性脑积水患儿的健康相关生活质量及父母关切：一个发展中国家的分析

Health-related Quality of Life in Children with Congenital Hydrocephalus and the Parental Concern: An Analysis in a Developing Nation.

作者信息

Bawa Monika, Sundaram Jegadeesh, Dash Vedarth, Peters Nitin James, Rao K L N

机构信息

Department of Pediatric Surgery, Postgraduate Institute of Medical Education and Research, Chandigarh, India.

出版信息

J Pediatr Neurosci. 2017 Jul-Sep;12(3):255-258. doi: 10.4103/jpn.JPN_42_17.

DOI:10.4103/jpn.JPN_42_17

PMID:29204201

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5696663/

Abstract

PURPOSE

To analyze quality of life of children operated for congenital hydrocephalus and the concern of parents in taking care of these children.

METHODS

Thirty patients who underwent ventriculo-peritoneal shunt were randomly selected with minimum gap of 1 year between surgery and study. Canadian validated questionnaire was used. Overall health score (OHS) and parental concern score (PCS) were correlated with gender, family type and number of surgeries.

RESULTS

Mean OHS was 159.43 which was summation of physical health (mean 45.76), social-emotional (mean 80.03) and cognitive health scores (mean 33.66). Mean OHS was 151.57 for males and 177.77 for females (p-value 0.233). Nuclear and joint families had mean OHS of 160.36 and 158.89 respectively (p-value 0.944). Those who underwent one surgery had mean OHS of 167.48 and PCS of 23.10 whereas mean OHS was 140.66 and PCS was 27.78 for those with multiple procedures. Mean PCS for males was 26.71 and for females was 19.33 (p-value 0.036 statistically significant). This was not statistically significant between nuclear (24.73) and joint families (24.26).

CONCLUSIONS

Quality of life of survivors of hydrocephalus is reasonably good even in developing countries due to keen parental involvement irrespective of gender, family type and number of surgeries.

摘要

目的

分析接受先天性脑积水手术患儿的生活质量以及家长对照顾这些患儿的担忧。

方法

随机选取30例接受脑室 - 腹腔分流术的患者，手术与研究之间至少间隔1年。采用经过加拿大验证的问卷。总体健康评分（OHS）和家长担忧评分（PCS）与性别、家庭类型和手术次数相关。

结果

平均OHS为159.43，由身体健康评分（平均45.76）、社会情感评分（平均80.03）和认知健康评分（平均33.66）相加得出。男性平均OHS为151.57，女性为177.77（p值0.233）。核心家庭和联合家庭的平均OHS分别为160.36和158.89（p值0.944）。接受一次手术的患者平均OHS为167.48，PCS为23.10；而接受多次手术的患者平均OHS为140.66，PCS为27.78。男性的平均PCS为26.71，女性为19.33（p值0.036，具有统计学意义）。这在核心家庭（24.73）和联合家庭（24.26）之间无统计学意义。