Jung Joon Hyung, Kim Min Joo, Choi Soo-Hee, Han Na Young, Park Jee Eun, Park Hye Youn, Han Ji Won, Lee Dong Young, Park Hye Yoon
Department of Psychiatry, Seoul National University Hospital, Seoul, Republic of Korea.
Department of Psychiatry, Seoul National University College of Medicine, Seoul, Republic of Korea.
Psychiatry Investig. 2017 Nov;14(6):779-785. doi: 10.4306/pi.2017.14.6.779. Epub 2017 Nov 7.
In this study, we aimed to investigate preferences regarding the disclosure of a dementia diagnosis and advance care planning (ACP) in patients with memory complaints and their families.
A total of 98 patients who visited the department of psychiatry at a tertiary hospital with memory complaints and 62 family members completed a structured questionnaire. The questionnaire included preferences on disclosure of dementia and cancer diagnosis, awareness and preferences on ACP.
In total, 96.9% of patients were willing to know their dementia diagnosis. There were no significant differences in preferences between the diagnosis of cancer and dementia. Only 24.7% of patients and 45.8% of family members have heard of ACP. However, 82.8% of patients agreed on the necessity of ACP under the current condition. Multivariate analysis revealed that younger patients were more likely to agree with necessity for ACP under the current condition.
In Korea, patients with memory complaints and their family members strongly favored a disclosure of dementia diagnosis. The majority of participants also agreed on the necessity of ACP. More active involvement of patients is needed in treatment decisions and care planning in cases of dementia as well as other life-threatening illnesses.
在本研究中，我们旨在调查有记忆障碍的患者及其家属对于痴呆症诊断披露和预先护理计划（ACP）的偏好。
共有98名因记忆障碍前往一家三级医院精神科就诊的患者和62名家属完成了一份结构化问卷。该问卷包括对痴呆症和癌症诊断披露的偏好、对ACP的认知和偏好。
总体而言，96.9%的患者愿意了解自己的痴呆症诊断。癌症诊断和痴呆症诊断的偏好之间没有显著差异。只有24.7%的患者和45.8%的家属听说过ACP。然而，82.8%的患者同意在当前情况下ACP的必要性。多变量分析显示，年轻患者更有可能同意在当前情况下ACP的必要性。
在韩国，有记忆障碍的患者及其家属强烈倾向于披露痴呆症诊断。大多数参与者也同意ACP的必要性。在痴呆症以及其他危及生命的疾病的治疗决策和护理计划中，需要患者更积极地参与。
