Menrath Ingo, Ernst Gundula, Mönkemöller Kirsten, Lehmann Christine, Eberding Angela, Müller-Godeffroy Esther, Szczepanski Rüdiger, Lange Karin, Staab Doris, Thyen Ute
Dept. of Pediatrics, Luebeck University, Luebeck, Germany.
Dept. Medical Psychology, Hannover Medical School, Hannover, Germany.
Klin Padiatr. 2018 Mar;230(2):73-80. doi: 10.1055/s-0043-121341. Epub 2017 Dec 13.
Modular patient education programs are effective in children with chronic conditions and their families. Little is known about the influence of socioeconomic status (SES), migration background (MB) and children's mental-health problems on the programs' effects.
Do SES, MB or mental-health problems influence the success of education programs (disease-specific knowledge, children's health-related quality of life (HRQoL) and life satisfaction and parents' condition-specific burden)?
Children with different chronic conditions and their parents participated in modular patient education programs. Before and 6 weeks after the participation SES, MB, children's mental-health problems, parents' und children's disease-specific knowledge, children's HRQoL and life satisfaction and parents' condition-specific burden were assessed by standardized questionnaires. The influence on the programs' effects of SoS, MH and mental-health problems were examined with variance and correlation analyses.
398 children (mean age 10.2 yrs) and their parents participated. Irrespective of SoS, MH and mental-health problems the programs were associated with improved disease-specific knowledge, children's HRQoL and life satisfaction and parents' disease-specific burden. At follow-up SoS, MH and mental-health problems were associated with reduced knowledge, reduced children's' HRQoL and life satisfaction and increased parents' disease-specific burden.
Disadvantaged families and children with mental-health problems benefit from education programs, but have an increased need of education due to special challenges.
模块化患者教育项目对患有慢性病的儿童及其家庭有效。关于社会经济地位（SES）、移民背景（MB）和儿童心理健康问题对这些项目效果的影响知之甚少。
SES、MB或心理健康问题是否会影响教育项目的成效（疾病相关知识、儿童健康相关生活质量（HRQoL）、生活满意度以及父母特定疾病负担）？
患有不同慢性病的儿童及其父母参与模块化患者教育项目。在参与项目前及参与后6周，通过标准化问卷评估SES、MB、儿童心理健康问题、父母及儿童的疾病相关知识、儿童的HRQoL、生活满意度以及父母的特定疾病负担。通过方差分析和相关性分析研究SES、MB和心理健康问题对项目效果的影响。
398名儿童（平均年龄10.2岁）及其父母参与了研究。无论SES、MB和心理健康问题如何，这些项目都与疾病相关知识的改善、儿童的HRQoL和生活满意度以及父母的特定疾病负担减轻有关。在随访时，SES、MB和心理健康问题与知识减少、儿童HRQoL和生活满意度降低以及父母特定疾病负担增加有关。
弱势家庭和有心理健康问题的儿童从教育项目中受益，但由于特殊挑战，他们对教育的需求增加。
