三种神经退行性疾病（阿尔茨海默病、帕金森病和帕金森病伴痴呆）的照护者体验。
Caregiver Experiences Across Three Neurodegenerative Diseases: Alzheimer's, Parkinson's, and Parkinson's With Dementia.
机构信息
1 University of Victoria, British Columbia, Canada.
出版信息
J Aging Health. 2019 Feb;31(2):256-279. doi: 10.1177/0898264317729980. Epub 2017 Oct 7.
OBJECTIVE
This article asks whether distinct caregiver experiences of Alzheimer's disease (AD), Parkinson's disease (PD), and Parkinson's disease with dementia (PDD) spouses are accounted for by disease diagnosis or by a unique combination of symptoms, demands, support, and quality of life (QOL) cross disease groups.
METHOD
One hundred five live-in spouse caregivers (71.4 ± 7 years) were surveyed for persons with AD (39%), PD (41%), and PDD (20%). A hierarchical cluster analysis organized caregivers across disease diagnosis into clusters with similar symptom presentation, care demands, support, and QoL.
RESULTS
Four clusters cut across disease diagnosis. "Succeeding" cared for mild symptoms and had emotional support. "Coping" managed moderate stressors and utilized formal supports. "Getting by with support" and "Struggling" had the greatest stressors; available emotional support influenced whether burden/depression was moderate or severe. The results remain the same when diagnostic category is added to the cluster analysis.
DISCUSSION
This study supports going beyond disease diagnosis when examining caregiver experiences.
目的
本文旨在探讨配偶照顾者对阿尔茨海默病（AD）、帕金森病（PD）和帕金森病伴痴呆（PDD）的不同体验是由疾病诊断还是由症状、需求、支持和生活质量（QOL）的独特组合来解释的，这些因素在跨疾病组中是不同的。
方法
对 105 名居住在一起的配偶照顾者（71.4±7 岁）进行了调查，这些照顾者的服务对象分别患有 AD（39%）、PD（41%）和 PDD（20%）。采用分层聚类分析，根据症状表现、护理需求、支持和 QOL 将照顾者按疾病诊断分为不同的组。
结果
四个聚类跨越了疾病诊断。“成功”照顾者照顾的是轻度症状，并且有情感支持。“应对”者管理着中度的压力源，并利用了正式的支持。“有支持的勉强维持”和“挣扎”者面临着最大的压力源；可用的情感支持影响了负担/抑郁是中度还是重度。当将诊断类别添加到聚类分析中时，结果仍然相同。
讨论
本研究支持在研究照顾者体验时超越疾病诊断。
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